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Meemee

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Everything posted by Meemee

  1. Hi again, so sorry to keep on posting, this is all just very new to me so I end up having lots of questions! I'm having a very hard time at the moment, which sadly I'm sure you're all far too familiar with. Every day I seem to be getting worse, I feel weaker and weaker and have become so slow and tired. Its making me feel like I just want to give up, every day is so hard. Its coming up to exams at university so I have to try and get myself to my lectures but I'm so mentally drained also with the worst brain fog! After all the tests I've had done its seeming less likely that they are goin
  2. Thank you for your response, I definitely need to improve my diet! I'm glad to hear it is treatable
  3. Thank you so much for your message, I feel much better I'll try not to worry, I'm so glad you have found something that works for you xxx
  4. Hi again! I have just seen a neurologist yesterday who suspects that I have a case of autonomic neuropathy. I am waiting to undergo some tests to confirm this. This has scared me a bit because I have heard that this condition isn't very treatable, especially if the underlying cause isn't found... I was wondering if anyone could reassure me; do you know of any effective treatment for autonomic neuropathy, or will I just have to grin and bear this for the rest of my life? Its having a really negative effect on my life already, and I'm just starting uni 😕 Any response would be really appreci
  5. No, but my doctor suspects it, just awaiting some tests now xx
  6. Can't afford a blood pressure cuff at the moment sadly 😕
  7. Sorry to hear you had such a disconcerting experience with the palpitations and such! Thank you for your comment, its nice to know I'm not alone
  8. Thank you so much for this, I feel much better! Hope you are coping well
  9. Im sorry to hear it is affecting you so much 😕 hoping you find a more permanent solution soon xx
  10. I love the sound of cooling towels! Thank you for your help xx
  11. Thanks for the advice, you have been very helpful xx
  12. Hi again! Sorry to ask another question, its just I only get to see my doctor once every month and I keep on getting so many symptoms due to my POTs! I have found that at around 7pm every day I get incredibly tired and lethargic, and struggle to concentrate. I notice that when this happens my pulse is quite weak, when usually it is quite strong. My blood pressure varies often I was wondering if this is normal? I worry about how my pulse strength varies so much, so if anyone else suffers with this too please let me know! It would be hugely reassuring. Many thanks, I hope you are all well x
  13. I suspect I have hyper-POTs also, its awful isn't it! Seems I have many of the same symptoms as you 😕 I hope you find a good way to cope with this, good luck!
  14. Thanks for your response, you have been very helpful! I will make sure I give that a go, best wishes
  15. Yes I really struggle when I cook dinner too!
  16. Keeping a log is a good idea! I hear that the inability to sweat is not very treatable so a bit worried about that... many thanks!
  17. Ill suggest that to my doctor the next time I see him! Thank you
  18. Im glad to hear you're not really struggling with this anymore hopefully that will be the case for me! Did you ever find that attempting to heat up then suddenly made you too hot?
  19. Thanks for your response! I have another appointment in two weeks, so hopefully he can help me then sorry to hear that you are struggling with this issue too, I will give cooling my feet a go!
  20. Hi! I have exactly these symptoms too! I understand how scary it is, just keep on persevering with the doctors until you find one that can give you a proper diagnosis and treatment plan. It seems impossible to find one but hang in there, you can do this
  21. Hi! I am an 18 year old female that has recently been diagnosed with POTs. I am really struggling with a lot of the symptoms, but the one that is actually effecting me the most is temperature regulation. When I am outside i am freezing and my whole body is cold, but when I try and warm up my body overheats and stays that was for hours even when I try to cool down again. I just tried to warm up after being outside by putting a water bottle to my head, but now my entire head is burning up and my face is bright red, and I cant cool down. It has been an hour since. I also struggle to sweat. I am r
  22. Hi! Not sure if this is the right forum to post on as I am new here! I am an 18 year old female that has recently been diagnosed with POTs. I am really struggling with a lot of the symptoms, but the one that is actually effecting me the most is temperature regulation. When I am outside i am freezing and my whole body is cold, but when I try and warm up my body overheats and stays that was for hours even when I try to cool down again. I just tried to warm up after being outside by putting a water bottle to my head, but now my entire head is burning up and my face is bright red, and I cant cool
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