JimL

Mine was inconclusive because I couldn't finish it. My heart rate went too high too quickly. It's what cued the doc into this deal. After that he ordered the TTT. 

I'll find out about heat soon enough. Summer is about upon us and it's my first summer with this stuff. I hate the heat as it is. 

I've had some. I have tinnitus all the time anyway, have for decades. One thing I have from time to time is patulous eustachian tube. 

I've had dropping problems, but it was from cervical issues that affected the brachial plexus. 

No problems falling asleep, but problems staying asleep. I go stretches where I wake up at the same time, usually 2:30-3am. It sucks because I usually can't fall back asleep or if I do, I have to wake up in a hour and I feel even worse then. 

I've had something similar, like a brain fart/stutter. Very disconcerting. I thought, am I having a stroke? 

At least you have a doc that takes you seriously and wants to find out what the story is. That counts for a lot. 

27 minutes ago, KiminOrlando said:

@JimL I agree with you about men. TTR Amyloidosis is also a concern. When men get this, it goes against consensus. Not saying it couldn't be the regular kind, but it seems more dangerous to me. 

my mother had amyloidosis. She came down with it at 70 and she died 2.5 years later. I think it was light chain. It attacked her kidneys first. She also had multiple myeloma secondarily. it's been 24 years and the treatments haven't improved much. 

i think they need to figure out why you're having these symptoms. calling dysautomia is fine, but there are a lot of underlying causes that may be treated to make it better, some can't and what worries me is that being a male that got this older, I have to wonder if it's something more serious. Most people that get dysautonomia are women in their 30's or so it seems. I wonder what the numbers are in terms of sex versus underlying causes. I think guys are more likely to get it from PNS/carcinoid types of problems. That said, you've had this for 3 years. My only advice is have the doctors drill down on the cause and remain as active as you can without overdoing it. 

2 hours ago, p8d said:

If feet/legs turn red/purple especially after a shower or other hot environment it’s a sign of blood pooling.  I generally only noticed mine after a shower.

Yup. I have post phlebetic leg syndrome. I had 3 DVTs at once in my right leg in 1993. Still have cirulation issues. The vascular guy says they can ablate some surface veins to improve flow. I've been wearing compression stocking on that leg since then, although with POTS, I know do both legs and thigh high, where as I was using a knee high before. 

I have GI symptoms and sometimes I just don't feel like eating, but then I get hungry and have to. Food is no joy anymore. Whatever is going on with me ruined it. 

Yeah...

On 4/16/2019 at 12:23 PM, misseb said:

I was told to take 1200mg of magnesium citrate a day, but I can't get over 200mg without having autonomic symptoms. I am stumbling around, and really light sensitive the next day if I take more. 

It can make you sleepy and also make one go to the bathroom. 

Excellent!

A vascular doctor can do a duplex ultrasound to see the circulation in your legs. 

They found a nodule in my lung around the time my GI symptoms started last year. Very low in the lung and uniform, probable granuloma. Thing is, it's increased in size somewhat. I have to wonder. I am due for another scan of it soon. I have to wonder if my POTS is PNS related based on my other symptoms, like diplopia. My PCP thinks it's all individual things. The PCP before didn't think anything: You've lost weight and your blood work comes back normal, be happy. Right. 

7 hours ago, Jason_X said:

I am a scientist and I worked on designs for detectors for detecting a variety of electromagnetic wavelengths. I have good news.  Low frequency electromagnetic waves in our environment are harmless.  I will state that unequivocally.   

 

 

 

There are limited ways in which an EM field can interact with a human body. With high frequency waves, the energy of the photons interact with the molecules. This is usually referred to as “ionizing” radiation, and occurs when the energy of the photos is high enough to cause chemical reactions.  Gamma rays can cause cancer.  Ultraviolet light can cause a sun burn.  As you go lower in frequency, visible light won’t cause any harm.  As you go lower, you might feel the warmth from the infrared of a light bulb. The photons from a 5G cell phone have about 1/10,000 the energy than the highest energy photons from your flashlight.  We are constantly being bathed in harmless and NECESSARY infrared radiation from our surroundings.

 

Okay, so what about non-ionizing radiation?  For this case, we’ll consider either static or relatively slowly oscillating fields (5G and below).

 

Static: Your body has fairly high electric fields across all of your cell membranes, even in your brain.  We live in a natural constant electric field just by being on the surface of the earth.  Walking across carpet in the winter will typically result in over 1000 volts between you and the door knob.  These fields are harmless.

 

5G cell phone frequencies and below: For oscillating external fields to interact with your body, they’d need to couple energy into your body. Your body is a terrible antenna, so this just doesn’t happen in any meaningful way. A microwave oven is able to heat water molecules because it’s essentially holding the food between two plates (efficiently forcing the field through the food) and blasting it with about 1000 watts of power. Virtually all of the power gets channeled into the food. This frequency is MUCH too low to cause direct ionization, and it heats by causing the water molecules to vibrate.  Your cell phone operates at about 15 watts, and virtually zero percent of that energy gets absorbed by your body. Any energy that is absorbed will be harmless, low intensity heat. Consider a 15 flashlight bulb next to your head. You might feel a little bit of warmth if the bulb were pressed against your skin, where all of that energy is concentrated where the bulb is touching you.  However, if that radiation is spread throughout your skull, it would still heat your head less than if you were wearing a winter hat. Since your head is a terrible antenna, only a miniscule fraction of that 15 watts would get absorbed by your head.

 

Some people have hypothesized that cell phones might be able to disrupt brain signals when the phone is held next to someone’s head.  However, the induced electric fields from your cell phone will be MANY orders of magnitude lower than what naturally exist across the cell membranes in your brain. I did some calculations a while back, and I seem to remember that the natural fields were millions or billions times higher. 

 

 

 

Occasionally, you’ll see an article published about detrimental EMF effects.  The problems that I’ve seen with these reports include

 

• They tend to report numbers that are barely statistically discernible

   

• The data seems to be cherry picked.

   

• It can’t be reproduced by anyone else (very important)

• Some of the original studies were proven to be fraud, and the researcher was fired

Interesting story:  I helped a scientist run an experiment in a magnet laboratory at MIT years ago.  They were measuring electronic properties of materials in extremely high magnetic fields.  We had to left our wallets out of the room because the magnets would erase any magnetic strips.  However, the facility had zero concerns about humans being in the room while the experiment were being run.

 

I guess Chuck McGill was wrong. 

On 3/6/2019 at 7:31 AM, Meemee said:

It must be, good luck with your surgery!

Thanks. Back to work tomorrow. Eegads. 

I am thinking about getting a book called The Subtle art of not giving a F@#$. I just read Man's Search for Meaning. I guess what I am getting at is anxiety is about the future, the unknown. Just trying to live day to day, more now. I've been having GI issues for many months now that preceded the POTS. I have a colonoscopy and EGD in 2 weeks. He's doing both at the same time. Just want to get it over to figure this out. I've narrowed it down to either I have an autoimmune disease, like PMR or GCA(or possibly an autoimmune reaction to h pylori) or I have carcinoid/PNS. Thing is, nothing has shown up on CT scans, ultrasounds or xrays. I hope you find the answers you are seeking. 

13 minutes ago, MeganMN said:

It is totally different than chropractic! No adjusting like that, just subtle movements. But I totally understand with the back history! Just wanted to share my success. At this point I will take what I can get!

Whatever works. There are times I wish I could get my back cracked, but I'll skip it. 

I get brain farts, like why did I go to the kitchen when I get there. It comes to me, but it's a little disconcerting. 

20 hours ago, KiminOrlando said:

I've had it for years. It bothers me most when it is 'quiet'.

Pretty much. Then I want to turn it off. You'd think they'd find a treatment by now. I guess there's no money in it. 

I get that with my upper body more. My lower body is ok. 

I know DO's are taught chiropractic techniques. I won't do them as I've had 3 spine surgeries and I won't let one touch me anymore. I used to go to a chiro before my spine problems though, but only for things like sciatica and brachial plexus problems. Now I am fused L4-5 and C2-6 and more will be needed later. Bad genetics, a good many years being obese and lifting heavy things contributed to this. I have to wonder if being a premie and having a huge growth spurt matters too. 

What did he or she do?