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JimL

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Everything posted by JimL

  1. Mine was inconclusive because I couldn't finish it. My heart rate went too high too quickly. It's what cued the doc into this deal. After that he ordered the TTT.
  2. I'll find out about heat soon enough. Summer is about upon us and it's my first summer with this stuff. I hate the heat as it is.
  3. I've had some. I have tinnitus all the time anyway, have for decades. One thing I have from time to time is patulous eustachian tube.
  4. I've had dropping problems, but it was from cervical issues that affected the brachial plexus.
  5. No problems falling asleep, but problems staying asleep. I go stretches where I wake up at the same time, usually 2:30-3am. It sucks because I usually can't fall back asleep or if I do, I have to wake up in a hour and I feel even worse then.
  6. I've had something similar, like a brain fart/stutter. Very disconcerting. I thought, am I having a stroke?
  7. At least you have a doc that takes you seriously and wants to find out what the story is. That counts for a lot.
  8. my mother had amyloidosis. She came down with it at 70 and she died 2.5 years later. I think it was light chain. It attacked her kidneys first. She also had multiple myeloma secondarily. it's been 24 years and the treatments haven't improved much.
  9. i think they need to figure out why you're having these symptoms. calling dysautomia is fine, but there are a lot of underlying causes that may be treated to make it better, some can't and what worries me is that being a male that got this older, I have to wonder if it's something more serious. Most people that get dysautonomia are women in their 30's or so it seems. I wonder what the numbers are in terms of sex versus underlying causes. I think guys are more likely to get it from PNS/carcinoid types of problems. That said, you've had this for 3 years. My only advice is have the doctors drill down on the cause and remain as active as you can without overdoing it.
  10. Yup. I have post phlebetic leg syndrome. I had 3 DVTs at once in my right leg in 1993. Still have cirulation issues. The vascular guy says they can ablate some surface veins to improve flow. I've been wearing compression stocking on that leg since then, although with POTS, I know do both legs and thigh high, where as I was using a knee high before.
  11. I have GI symptoms and sometimes I just don't feel like eating, but then I get hungry and have to. Food is no joy anymore. Whatever is going on with me ruined it.
  12. It can make you sleepy and also make one go to the bathroom.
  13. A vascular doctor can do a duplex ultrasound to see the circulation in your legs.
  14. They found a nodule in my lung around the time my GI symptoms started last year. Very low in the lung and uniform, probable granuloma. Thing is, it's increased in size somewhat. I have to wonder. I am due for another scan of it soon. I have to wonder if my POTS is PNS related based on my other symptoms, like diplopia. My PCP thinks it's all individual things. The PCP before didn't think anything: You've lost weight and your blood work comes back normal, be happy. Right.
  15. I am thinking about getting a book called The Subtle art of not giving a F@#$. I just read Man's Search for Meaning. I guess what I am getting at is anxiety is about the future, the unknown. Just trying to live day to day, more now. I've been having GI issues for many months now that preceded the POTS. I have a colonoscopy and EGD in 2 weeks. He's doing both at the same time. Just want to get it over to figure this out. I've narrowed it down to either I have an autoimmune disease, like PMR or GCA(or possibly an autoimmune reaction to h pylori) or I have carcinoid/PNS. Thing is, nothing has shown up on CT scans, ultrasounds or xrays. I hope you find the answers you are seeking.
  16. Whatever works. There are times I wish I could get my back cracked, but I'll skip it.
  17. I get brain farts, like why did I go to the kitchen when I get there. It comes to me, but it's a little disconcerting.
  18. Pretty much. Then I want to turn it off. You'd think they'd find a treatment by now. I guess there's no money in it.
  19. I know DO's are taught chiropractic techniques. I won't do them as I've had 3 spine surgeries and I won't let one touch me anymore. I used to go to a chiro before my spine problems though, but only for things like sciatica and brachial plexus problems. Now I am fused L4-5 and C2-6 and more will be needed later. Bad genetics, a good many years being obese and lifting heavy things contributed to this. I have to wonder if being a premie and having a huge growth spurt matters too.
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