Delmar

I was diagnosed with dysautonomia 6 months ago. I have a history of congenital scoliosis, tethered cord syndrome, dyastematomyelia, and dystonia. I currently take mestinon 60 mg 4 times a day which has significantly relieved my tachycardia.( my heart rate used to go up to 140 ). I couldn’t walk 2 blocks without feeling like I was getting a heart attack. And all my symptoms would go away the moment I laid down in bed. But at night my heart rate could easily drop to 48-50 with really bad palpitations. Mestinon is the only medicine I’ve been given so far. But I’m also taking meds for spasms for my neck, baclofen, Valium. Botox. And tramadol for pain. Topamax for migraines .

It is so incredibly difficult to deal with this condition. I have dealt with it for many years, and I went to many doctors who simply said that I was experiencing stress/anxiety. (One had the nerve to tell me that I was pretty and that I should just get myself a boyfriend). I had 5 spine surgeries, because I was always in pain. Now I’m 47, unable to work( I’m an RN) I suffer from dizziness, internal vibrations, feelings of being strangled, difficulty breathing, vertigo, migraines, palpitations... and the list goes on. Mestinon helps but not enough. If only I had found good, caring doctors early on, who had taken the time to listen. Please don’t give up and look for a good specialist who can help stabilize your symptoms.