Mrs r

I have this it just awful i have mast cell pots me/cfs....

I have this now...

Arw bless you that new bath was just to tempting !i recently got a new bath board after months year struggling wash my hair i washed it twice mYSELF this week boy did i pay for it fatigue tremors pain heartrate bp .....but ive got clean hair😂28 going on 100 ...  

Thank u all for your kind replys once my doctors has sorted my stomach issues i will mention it .my cardiologist is  also wanting to try me on mestion?but i have been putting it of for mast cell reasons and if am honest am genrally terrified to feel any worse at the moment i never agree to any thing they offered me so far ...belly issues still on going just waiting for results ...as if they going give me a answer ....

Sorry that is alot of auto uncorrect ! 😂my hands look like i have pre eclampsia the same when i had my son the swelling 

Just other day i had a blood sugar drop after hour of just eating food

I find when my pots is bad it brings them on didnt help in hostpital so i helped myself sugar in water yack but affective i think u need go see your doctor it very dangrous get plan of action to help it hope u get sorted 

I have had all my vitamins tested my magnisum low i was on tablets but had lot belly probloms so paused for while . i have to take dioralyte once day for my electrolytes soduium colride potasuim in it that seems help with the fainting .my levels all my vitamins are always up down .tremors are so scary i got upset on top everything stressed my body out had shakes shivers tremors heartrate high was awful i was allready unwell chronically ovs then the viral then the water infection . Still on going got go bk wed for more bloods water sample and if still got sore belly poo sample to see if out going on with my bowel she said. thank u for all your kind replys 😊

It awful i mentioned it to several doctors it like having pre examples ... i had with my son bloody king kong hand😣😣😣

hey I kind of spammed  the forum sorry  im new lots questions ! not new to illness but new to forum.... six years and counting... just wondered if anyone in uk and what help u had with flares episode's extra .me &my husband are really struggling to find help for my conditions...fed up in need of  support...😴 just wondering if other women have been treat same as me in er doctors etc like all in your head cause u a women u must be hormonal or dramatic...even with a heartrate 140 it all in my head....and acardioligst note  to prove it .was told not to let it consume my life ! by last doctor in er I felt so belittled angry upset I needed help not macho with a title who was maybe couple years older than me … I really am scared don't no who to turn to in case of flares guess I have no choice but to go to a&e if am unwell 

hey so I am having a really rough couple weeks months ….years.. at moment I have viral infection water infection my mast cells hate me and my pots me/cfs has joined the club my walking is  impossible at moment I struggle get to doctor I have to use my wheelchair my husband or my mum takes me I have had three day course of antibiotic's they not helped so sent sample of to the lab they don't like give out  lot antibiotics here in uk . she was worried about my immunity to I usually go hospital get iv saline for my pots when its to much try to got really awful doctor he wouldn't give me it !so I've had suffer even though I had a hospital letter of my cardiologist telling them I have serve dysautonomia so I went home been in my bed ever since I no that not help my pots ….I try keep my legs moving ive had tremors with stress and my legs really shake terrifies me  .ive got wait till Monday to see a doctor at my local office she lovely so I rather suffer and wait ...guess am just looking for any advice feeling very low with it all .  

😥😄hi 

I have pots me/cfs possible mast cell I am on diorlyte sachets for extra salt potassium ever since I started them I have put on weight. I have had terrible water retention in my hands any advice