Hi All,
New to the forum, 30 years old. I've been suffering from POTS for about 3 months and was recently diagnosed via TTT. I have a few questions, if you don't mind.
1) Is it worth it to go to Mayo for additional testing? I have an cardiologist who is willing to prescribe different medications to see what works, but I've heard Mayo has a great treatment center
2) I've recently been suffering from severe neck pain and a host of neurological symptoms (headaches, tinnitus, dizziness, tingling in hands) is this normal for POTS? My neck muscles are extremely tight and I have limited range of motion in turning my head. Despite several MRIs, an EMG, an xray, and a consult with a neurosurgeon, they can find nothing wrong.
3) I have also had episodes of very severe shortness of breath, and the feeling that my body has "forgotten" to breathe. This occurs most frequently when I'm trying to sleep. Does anyone have any solutions for this? Is it dangerous? It was so bad last night that I went to the ER and I got no sleep afterwards due to it continuing all night. It was genuinely terrifying.
These symptoms are all very new and scary to me. I would appreciate any comments