gossamer4448

I dont know if its presyncope my vision is fine no gratness or tunnel vision just dp kicks in making things bright and loud and like im looking through a camera . usually after a while im fine also helps to eat something as my sugar changing causes this also . i am seeing a cardiologist today that says they deal with it ill ask about a autonomic speicialist but im not sure if one is around my city.

@Hutch you got depersonalization from b12 injections ? i thought that helped people feel better i got mine from ptsd but pots makes it worse .

I cant take this anymore not only do i have POTS problems but my depersonalization seems to get worse when I walk around too much .I was just walking from the car to the house . Then the depersonalization hits hard everything looks weird, sounds are different and my mind feels blank im confused and that starts a panic attack .Every time i get scared and i had it so many times before but its like my logical brain is not working and it feels like the first time. Does anyone with dpdr relate?

no i am feeling this myself but my mom does think im being dramatic about my symptoms. she helps cleans my room and she helps me bathe but when I overexert myself i get panic attacks and feel bad . i try to get up and walk around but if i Have to stand still i get sick and anxious somethings gonna happen. I dont like relying on others so much but i dont want to feel those feelings. She does not undertstand what i go through, she can do everything without a second thought.i have to mentally prepare myself to shower and leave the house .

How much water should I drink? I have a lot of salty snacks and I get really thirsty. is 4 liters too much I usually dont drink that much but is it ok if sometimes I do ? i am 215 pounds 5ft 7 btw

I know its not my fault I have this disorder ,but I feel a lot of guilt.I feel like I am a burden on my family. I know they love me but I just need a lot of help and emotional support. I feel bad because some people with pots are thriving,going to stores ,restaurants,jobs and I am 23 and house bound still living with my parents .I also have a lot of mental problems too (GAD,PTSD,depression)

I know not moving is bad for pots and i am practically bed bound,should i at least every few hrs get up and walk around my house nothign strenuous just to get my heart used to it so it doesnt get worse. right now i can not excercise unless its very light leg lifts in my bed.Sorry to post here so often i just have a lot of questions and i dont see a doctor for a while .

Hello does anyone else get itchy/a weird pins and needles feeling after being up for a while and walking around? I just went from my car to my house and when I sat down i got a pins and needle feeling and itchiness on various parts of my body.my heart didnt feel liike it was beating to hard but i was feeling out of it as well.

oh ok . thank you for your response i hope something helps me . i guess i gotta do a catecholamine test to see

I always thought saline would not help this type because its a high norepinepherine issue.How does saline help you? what does it do for this subtype .

do you have a lot of anxiety and depersonalization i have a lot of anxiety and depersonalization after a bad panic attack last year symptoms escalated from there to now and its much worse .

what works for you?

I have yet to see a specialist my cardiologist said i had pots and then nothing . i am seeing one soon im really scared to have this type . i dont know my bp during the episodes i bet its high because they make me anxious .

Hello i was wondering if anyone can clear something up for me ? i have been having adrenaline type rushes and jittery feelings sometimes . i dont know if i have hyper pots because from what i understand its like constant adrenaline , anxiety and higher heart rate and mine is episodic and waxes and wanes. last time it was this bad it was 5 months ago(adrenaline feelings) . Does normal pots share some of the same symptoms from time to time?

hello pistol do you think you can have low blood flow to the brain laying down even . its not always when im upright or my heart is fine and i stil have symptoms

Hello, i am a 23 yo female and new to this community. I have been a lurker for a while and finally decided to join ! I was wondering if anyone else with dysautonomia experiences dissociation like symptoms ? I feel disconnected with my thoughts, emotions and body like not knowing when im hungry or tired . I also have bad confusion and empty feeling in my head almost 24/7 but this is more than brain fog which i know is a common symptom. I am currently on my period right now and have a cold and it feels so magnified along with my dysautonomia .Is anyone else like me or is this two separate things ? I did have a massive panic attack last year when the dissociation and more severe dysautonomia symptoms started. I had it for a while before that but not really noticeable and everything snowballed from there, but just when i thought i was finally improving i am knocked back again by this period and cold .😫