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Everything posted by gossamer4448

  1. so for hyper pots tho is the HR usually also high and sustained?
  2. my bp goes up def not low hr goes up right at begining ill check again and it starts to come down . so its not sustained?
  3. So is it POTS still if your heart is high when you first stand but comes down in a min or two or when you walk around ? My hr goes up well past 30 but just for a min then starts to come down. I read somewhere its sustained hr increase .
  4. yeah last time they checked it was higher than normal.
  5. I know anyone feels sick not eating all day but does anyone else feel like on deaths door when they go 6 or more hours? I had some pretzels but I need a meal . My moms bringing food now and im just hoping I feel better once I eat . symptoms are confusion weakness,anxiety , why would POTS cause these symptoms from not eating ? BS is 108 so not low either .
  6. yeah This is all i could find but thats extreme emergency case. I mean just low blood volume chronically.
  7. Whats the symptoms of this ? can you have this but not dysautonomia ? is it similar problems ? I cant find much about it online oddly .
  8. Theres nothing I can do i too cant take BC and my sleep issues are hormonal. everytime after my period I get hardly any sleep I. dont know what to do . Im afraid of a mental breakdown and having to stay in a psych ward because im losing my mind, my self . my period makes me so depressed because i cant do anything about it every month . What medicine is the one that helps your brian fog?
  9. My bp doesnt seem to low i have checked it when feeling bad symptoms and there doesnt seem to be a cause. maybe low blood volume from losing more blood during period? I heard low blood volume can mess with your head . I cant take BC it started my problems due to bleeding non stop for months .That would be really bad for that to happen now . Idk why i had that reaction but im not willing to risk it .
  10. Does anyone else have really bad brain fog like REALLY bad ? My hugest complaint with all of this is the cognitive issues i suffer . I already have PTSD and depersonalization which creates brain fog between all of it I feel like I have dementia ! I dont even recognize my own house ive lived in for 15 years .Obviously I know I live here but it dosent seem like I do if that makes sense . I am a day after my period and the FOG is just awful my mind is totally blank gone . I only slept 4 hours thanks to lovely symptoms keeping me awake and im at the end of my rope . Please what has helped your mental clarity ?! I was thinking about taking iron to maybe help with my period . Does that help anyone .Sorry for being all over the place in this post I am out of it so bad right now.
  11. How do you know if you have Hyper pots ? whats a adrenaline rush feel like ? typically how high is your HR? ect
  12. my chloride level is upper range almost out of it but chloride is in my driking water and gatorade ! i just dont know what to do i dont want too much of it . i wanted to try electrolyte capsules but they have a lot of chloride in them ! I see my doc next month . do you guys have higher chloride from the salt we consume ? do you keep having a lot anyways im new to all of this .
  13. Does anyone else get these scary feelings in your head it feels like blood isnt going to it or something i even get it laying down which doesnt make sense.
  14. so im not feeling good my bp is perfect laying down and pulse is fine but i feel very bad i was sitting up for a long time . do you think its a blood volume problem? how does my dr test for that? my oxygen is also never below 90 so i get plenty oxygen.
  15. is there a way to test for hypoxia to see if thats whats going on? Also i have a pulsox its alwasy fine i dont have low oxygen according to that i think its more of a blood loss from the brain ,
  16. i just had a weird episode i dont know if it was a panic attack or a seizure or what we checked bp and it was perfect i thought i was gonna collapse trying to walk into the house i figured it was low . ok ill start at the beginning. i was going to go into walmart but my chest was feeling tight and i was anxious and i felt panic so i didnt make it in there i had my mom take me home and it didnt fo away i still had waves of panic and feeling like i was dying my head felt like it wasnt getting blood.or oxygen i got home and my body felt heavy i needed help getting in my room and my limbs was feeling tingly and my nose and even in my chest im doing better now but that was scary situation didnt feel llike my usual episodes.
  17. Someone please help me I can't find any doctors in Colorado that knows about pots . the only ones I I found so far don't take my insurance or any insurance and it's a $2,000 Co pay . I have checked the doctors on this site and they all don't take my insurance. things get so bad on my period (which I am due to start soon )I feel really depressed. I just really need something to work out I can't diagnose myself or get myself medication so if you have a doctor in Colorado that treats your pots please tell me!
  18. Does anyone have episodes like this. If I have been standing and walking around a lot or sitting up for a long time I get what I call panic attacks. I always cry (which is weird) I'm scared my mind is blank and I'm confused. This will go on for 30 minutes to an hour sometimes having something to eat helps it go away faster. my blood sugar is not low when this happens.
  19. should i ask for a electrolyte test i just worry maybe about nothing but thats my personality lol
  20. hey guys, so i have been drinking a fair amount of water id say 2 liters a day sometimes a little more or less. and ill have darker urine in the mornig but then after just a bit of water like 2 glasses its light yellow and has been sometimes clear .im worried about drinking too much as it seems im not dehydrated at all i dont know what to do . I know drinking too mcuh depletes me of salt but i have hig bp so i cant load up on that either.
  21. I cant find any one who treats POTS or even knows anything about it in colorado .I have looked at the ones listed on this site and they dont take my insurance can anyone help me please !
  22. So I went to see the doctor yesterday and he said by definition I could not have pots because my blood pressure went up. they had me do a poor man's tilt test in the office and I haven't eaten at all that day so standing naturally was hard on me.I start feeling sick and getting anxious so I couldn't even ask him all my questions.. I just feel like I'm getting nowhere with cardiologists.I have an appointment next week with my neurologist that I like I heard that they also deal with this because it's more of a brain issue then a heart one. I hope they can help I hope someone will listen to me I can't even get a diagnosis but I know something is very wrong. I did have a brain MRI that came out clear so it's not a tumor or anything but it is something.
  23. if anyone has had this problem what treatments have helped you?
  24. I need a autonomic specialist for colorado anyone that lives here recommend someone.
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