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gossamer4448

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Everything posted by gossamer4448

  1. gossamer4448

    Pee

    hey guys, so i have been drinking a fair amount of water id say 2 liters a day sometimes a little more or less. and ill have darker urine in the mornig but then after just a bit of water like 2 glasses its light yellow and has been sometimes clear .im worried about drinking too much as it seems im not dehydrated at all i dont know what to do . I know drinking too mcuh depletes me of salt but i have hig bp so i cant load up on that either.
  2. gossamer4448

    Pee

    should i ask for a electrolyte test i just worry maybe about nothing but thats my personality lol
  3. gossamer4448

    dissapointing doctors

    So I went to see the doctor yesterday and he said by definition I could not have pots because my blood pressure went up. they had me do a poor man's tilt test in the office and I haven't eaten at all that day so standing naturally was hard on me.I start feeling sick and getting anxious so I couldn't even ask him all my questions.. I just feel like I'm getting nowhere with cardiologists.I have an appointment next week with my neurologist that I like I heard that they also deal with this because it's more of a brain issue then a heart one. I hope they can help I hope someone will listen to me I can't even get a diagnosis but I know something is very wrong. I did have a brain MRI that came out clear so it's not a tumor or anything but it is something.
  4. gossamer4448

    doc in colorado

    I cant find any one who treats POTS or even knows anything about it in colorado .I have looked at the ones listed on this site and they dont take my insurance can anyone help me please !
  5. gossamer4448

    Autonomic specialist

    I need a autonomic specialist for colorado anyone that lives here recommend someone.
  6. gossamer4448

    HELP

    I cant take this anymore not only do i have POTS problems but my depersonalization seems to get worse when I walk around too much .I was just walking from the car to the house . Then the depersonalization hits hard everything looks weird, sounds are different and my mind feels blank im confused and that starts a panic attack .Every time i get scared and i had it so many times before but its like my logical brain is not working and it feels like the first time. Does anyone with dpdr relate?
  7. gossamer4448

    HELP

    if anyone has had this problem what treatments have helped you?
  8. gossamer4448

    HELP

    I dont know if its presyncope my vision is fine no gratness or tunnel vision just dp kicks in making things bright and loud and like im looking through a camera . usually after a while im fine also helps to eat something as my sugar changing causes this also . i am seeing a cardiologist today that says they deal with it ill ask about a autonomic speicialist but im not sure if one is around my city.
  9. gossamer4448

    HELP

    @Hutch you got depersonalization from b12 injections ? i thought that helped people feel better i got mine from ptsd but pots makes it worse .
  10. gossamer4448

    water

    How much water should I drink? I have a lot of salty snacks and I get really thirsty. is 4 liters too much I usually dont drink that much but is it ok if sometimes I do ? i am 215 pounds 5ft 7 btw
  11. gossamer4448

    Guilty

    I know its not my fault I have this disorder ,but I feel a lot of guilt.I feel like I am a burden on my family. I know they love me but I just need a lot of help and emotional support. I feel bad because some people with pots are thriving,going to stores ,restaurants,jobs and I am 23 and house bound still living with my parents .I also have a lot of mental problems too (GAD,PTSD,depression)
  12. gossamer4448

    Guilty

    no i am feeling this myself but my mom does think im being dramatic about my symptoms. she helps cleans my room and she helps me bathe but when I overexert myself i get panic attacks and feel bad . i try to get up and walk around but if i Have to stand still i get sick and anxious somethings gonna happen. I dont like relying on others so much but i dont want to feel those feelings. She does not undertstand what i go through, she can do everything without a second thought.i have to mentally prepare myself to shower and leave the house .
  13. gossamer4448

    ITCHY

    Hello does anyone else get itchy/a weird pins and needles feeling after being up for a while and walking around? I just went from my car to my house and when I sat down i got a pins and needle feeling and itchiness on various parts of my body.my heart didnt feel liike it was beating to hard but i was feeling out of it as well.
  14. gossamer4448

    Hyper pots?

    Hello i was wondering if anyone can clear something up for me ? i have been having adrenaline type rushes and jittery feelings sometimes . i dont know if i have hyper pots because from what i understand its like constant adrenaline , anxiety and higher heart rate and mine is episodic and waxes and wanes. last time it was this bad it was 5 months ago(adrenaline feelings) . Does normal pots share some of the same symptoms from time to time?
  15. gossamer4448

    Deconditioning

    I know not moving is bad for pots and i am practically bed bound,should i at least every few hrs get up and walk around my house nothign strenuous just to get my heart used to it so it doesnt get worse. right now i can not excercise unless its very light leg lifts in my bed.Sorry to post here so often i just have a lot of questions and i dont see a doctor for a while .
  16. gossamer4448

    Hyper pots?

    oh ok . thank you for your response i hope something helps me . i guess i gotta do a catecholamine test to see
  17. gossamer4448

    Hyper pots?

    I always thought saline would not help this type because its a high norepinepherine issue.How does saline help you? what does it do for this subtype .
  18. gossamer4448

    Hyper pots?

    do you have a lot of anxiety and depersonalization i have a lot of anxiety and depersonalization after a bad panic attack last year symptoms escalated from there to now and its much worse .
  19. gossamer4448

    Hyper pots?

    what works for you?
  20. gossamer4448

    Hyper pots?

    I have yet to see a specialist my cardiologist said i had pots and then nothing . i am seeing one soon im really scared to have this type . i dont know my bp during the episodes i bet its high because they make me anxious .
  21. gossamer4448

    Dissociation any one ?

    Hello, i am a 23 yo female and new to this community. I have been a lurker for a while and finally decided to join ! I was wondering if anyone else with dysautonomia experiences dissociation like symptoms ? I feel disconnected with my thoughts, emotions and body like not knowing when im hungry or tired . I also have bad confusion and empty feeling in my head almost 24/7 but this is more than brain fog which i know is a common symptom. I am currently on my period right now and have a cold and it feels so magnified along with my dysautonomia .Is anyone else like me or is this two separate things ? I did have a massive panic attack last year when the dissociation and more severe dysautonomia symptoms started. I had it for a while before that but not really noticeable and everything snowballed from there, but just when i thought i was finally improving i am knocked back again by this period and cold .😫
  22. gossamer4448

    Dissociation any one ?

    hello pistol do you think you can have low blood flow to the brain laying down even . its not always when im upright or my heart is fine and i stil have symptoms
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