Hello, everyone! New member, still getting used to her POTS diagnosis from July. I’m learning the in’s and outs of this complex little problem, while having others tossed on top of me.
My main question of this evening is: Do you regularly get excruciating chest pains (usually a dull/ache sensation) or have the sensation of something heavy on your chest?
This has sent me into a panic on more than one occasion, taking me to the hospital thinking that I must be having a heart attack: after all, that’s all that fits, right? Especially when you have back, jaw, or left arm pain? And nausea? It just sounds like one. But never in all of my trips has it been.
(Mind you — since I began having those trips, I also received diagnoses of Fibromyalgia and EDS of an unspecified type until my genetics testing appointment in June, so that adds to the pain.)
But then there are nights like tonight where my chest pressure is absolutely debilitating. I can’t lie on my back without feeling like I’m being crushed, and sitting up causes the pain. So I’m wondering: anyone else get these feelings, or just me? And if you do get them, what helps relieve your symptoms?
(As another baseline of reference: I currently drink around 128oz water daily, add salt where I can, am on Acebutolol 200mg as a beta blocker [that has stopped working], and am still struggling hard.)