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Everything posted by Derek1987

  1. I have hyper pots and i really need a laxative. I believe my xanax is making it hard for me to go. Before the xanax, 0 problems. Ive had a few fainting incidents and im not sure if a laxative could mess me up somehow. Thoughts and experiences?
  2. Now that the weather has cooled down, i am having way less headaches. I can somewhat function for longer periods of times as well. I was taking aspirin like candy 6 to 7 days a week. Now maybe 1-2 times a week. Crazy.
  3. The full trailer has arrived. A couple bruce lee scenes as well. Looks really good.
  4. Yes. I actually had chest pain when i ate popeyes. I dont eat popeyes often but the last 2 times i ate it, my heart was racing. The heart pain came from when i was squatting down and i stood up. First time ive felt heart pain. Its as if i didnt take any medication. Just rolling in a different position in bed would make my heart race for a short time then calm back down like before i started medication. I wonder what it is in popeyes that really messes with me.
  5. I have always tried to describe myself as if im floating in a boat sometimes. I can feel this way in any position. I've had muscle twitches all over my body for the past couple of months. Not sure if related. But i physically saw myself swaying back and forth in the mirror. I also feel like i am losing my balance sometimes. Starting to wonder if its parkinsons disease or something or is it just a pots thing. Someone on another group mentioned MdDS. Anybody deal with these symptoms?
  6. Coreg has helped a lot but hasnt completely taken them away.
  7. I too have been having muscle twitches all over my body for maybe 4-6 weeks straight now. I told my specialist about it and they took blood to check my electrolytes. I guess they must be okay because i havent heard anything back. So i am lost just as you are.
  8. Im depressed by my limitations and people close to me who dont understand. It hurts when people close to you look down on you as weak or something. It causes tension. Yeah this illness sucks.
  9. Yes. Sometimes both though. Its been going on my whole life though.
  10. I was blessed to have this cat house donated to me brand new. I put it together and of course i had to take a break and i am still suffering from doing it. Felt faint the first night. Pushed through so the cats can have somewhere to be warm this winter. Its around the 60s so isnt terribly cold at night yet. I did order a heating pad for the inside. I plan to insulate it and put a plastic flap on the front door. I hope they use the inside. The kitten took to the upper deck the first night. My grey cat named storm(not one of the strays) of course had to go inside while i was putting it together
  11. So my camera did not pick up the colors very well but i will explain. Last night i got in the shower and i noticed after a couple mins my left arm and hand were blood red and my right arm was completely normal in color. Then after another couple of minutes both of my arms and hands were blood red. Then in less than 2 minutes my arms went back to their normal color except for some red blotchy spots on my hands. I took a picture of it. My hands look pretty red in this picture but the camera is just crap. My hands were pale(normal) and the red blotches were more noticeable than you can see in the
  12. I just ordered some for my wife for sleep and pain. She will test it out tonight. Im not allowed to post the website. But for people with a disability, low income, or a veteran, you get 60 percent off. I bought her a bottle of 50mg cbd capsules. 40 in the bottle. Regular price. $90. It only cost us $36 with the discount. Free shipping and no tax. You have to upload an award letter or a doctors note or some other document options. It says on the website what documents are acceptable. The brand is lazarus naturals. They sell tinctures, pills, creams and other stuff. Edit: please pm
  13. Im probably the only other person on the board who knows what song that is.
  14. I take mestinon. The only thing it does for me is make me have to take it lol. My next appointment with my specialist im just gonna be like this isnt working peeps. Hmm. Ill just try and avoid taking any meds for headaches if possible.
  15. Its been going on for months. Could be stress/tension headaches. I might try tylenol as ive gone through a bottle of 500 aspirin way too quickly. Sadly my body does not even tolerate caffeine anymore. A can coke will send me into extreme anxiety with sweaty hands and even feet at times. I used to live on 5 hour energy and energy drinks from my early 20s. But i suspect that was this disease with extreme fatigue but hadnt progressed to where it has me now.
  16. They are random. Sometimes i wake up with them. Or they just come from nowhere. My eyes and forehead and temples hurt. I woke up with one today. Its been there since i woke up. Have not taken any aspirin. If i did, it would go away.
  17. I did not know tylenol was any different than aspirin, advil etc. Are there long term side effects when taking that? And no i have not. What kind of doctor checks that? Never heard of this before.
  18. I have headaches 7 days a week now. Aspirin actually works 99 percent of the time. Is there an alternative that doesnt have internal bleeding as a side effect? I cant keep taking 1000mg of aspirin everyday.
  19. She told me the same thing. There is no cure but symptoms can be managed. Well so far after a year, they have not been managed. After a year they have only tried me on 2 medications. Just waiting on vandy or a healing.
  20. Thanks for the response although i did not understand most of it lol. I wonder how come you dont experience tachycardia with a beta blocker and i always experience it regardless. All the beta blocker has done was made my laying down HR drop from 70s/lows 80s to low 60s/50s. i stand up and can still get a 110 plus reading. Before the beta blocker, laying down i would be around the 70s/80s like i said and could jump to 130s 40s 50s upon standing. All the medicine is doing is lowering the HR but its not fixing my broken nervous system at all. Im basically still in t
  21. I see an autonomic dysfunction specialist. She is a NP but specializes in autonomic dysfunction. Yes they did figure out i have hyper pots. And i agree with them on that. My BP rises upon being upright along with my HR. I have elevated adrenaline in my body upon being upright. So when im sitting or standing, my body is being overloaded with adrenaline causing panic. Its an anxiety i cant explain. (Sitting in a lobby waiting for the doctor to call me is torture) They have me on carvedilol and mestinon. I understand their goal is to reduce my adrenaline and HR. Here is the proble
  22. I live in west TN. Oct 1st the high is predicted to be 98 degrees. We are breaking records where i live. I am very heat intolerant and looking for some relief but its nowhere in sight.
  23. I bet. Yall have free healthcare correct? I have thousands of dollars of debt between my wife and i of medical bills. Need to move to canada lol. The cold would be too bad on her bones though.
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