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Sam4877

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  1. Does anyone know if Cholinergic Urticaria linked with POTS/Dysautonomia? I get hives on my arms after I excerice and sweat or take a hot shower.
  2. I have read alot about Coenzyme Q10 reducing Systolic Blood Pressure by 17mmhg and Diastolic Blood Pressure by 10mmhg on average. Has anyone tried this instead of going on Blood Pressure Medication? Sources: http://pennstatehershey.adam.com/content.aspx?productid=107&pid=33&gid=000295#:~:text=In one analysis%2C after reviewing,numbers of people is needed. https://www.verywellhealth.com/improve-blood-pressure-with-coq10-supplements-4129265
  3. Hi All, I have been measuring my blood pressure in supine, sitting and standing positions and I have noticed that my sitting blood pressure is significantly higher than my supine and standing blood pressure. Standing BP is lowest followed by Supine and Sitting is highest. Another thing I have noticed is that transitioning from a standing to supine position my blood pressure increases by 15-20 points systolic and 8-12 points diastolic, is this normal? This does not make sense to me, has anyone else expirienced anything like this? Thanks in advance!
  4. Hi All, I read on several different websites where it said that after doing strenuous excercise if the heart rate doesn't fall more than 12bpm after 1 minute it is a predictor of all cause mortality. This really concerns me because after exercise my heart rate doesn't fall very quickly, sometimes around 8-10bpm after 1 minute and then takes hours for it to come back into normal range under 100bpm. Is this a cause of concern or does this not apply to us because we have POTs? References: https://www.ahajournals.org/doi/full/10.1161/JAHA.117.008341 https://www.nejm.org/
  5. I am a 25 year old male 5ft 10inch and 75kg. I had an echocardiogram done recently due to my High Blood Pressure from HPOTs. When I went to see my Doctor for the results he said everything was normal, however when he gave me the report I found a few concerning details. Ejection Fraction was 80% Fraction Shortening was 48% IVSd was 1cm LVPWd was 0.9cm Should I be concerned about such a high Ejection Fraction and Fraction Shortening? Do my IVSd and LVPWd values indicate borderline Left Ventricular Hypertrophy? Thanks in advance!
  6. Does anyone with Dysautonomia/POTS have visual disturbances when they strain on the toilet? I am seeing phosphenes very often now which is like squiggly lines/shooting stars in my peripheral vision which disappears after a few seconds.
  7. Does anyone here have a difference of 10mmhg or greater blood pressure between both left and right arms? I consistently have a difference of 10mmhg or greater between the 2, my right arm is consistently lower than my left arm for both systolic and diastolic. I am freaking out because everywhere on the internet it says that it is a sign of a blocked artery and increases chance of mortality. Thanks in Advance!
  8. Hi All, my hands and legs go numb very often when I am laying down or sitting in a position where there is a little bit of pressure on them is this normal with POTS? When I am sleeping most of the times my arms are numb.
  9. Hi guys, I have been consistently getting a resting BP of 122/77 (sitting BP) since a very long time and since the past few weeks it has changed to 135/91 (sitting BP) and standing BP which use to be 135/92 to 111/77. I was suspected to have hyperadrenergic POTs and always had a high standing bp and normal sitting bp. Has anyone else experienced something similar where the BP's flip sides? My HR still goes up which is consistent with POTS.
  10. Is yours under 10 mmHg or more? Mine seems to be more than that.
  11. @Pistol have you also noticed a difference in blood pressure for the right and left arm? I have a bp of 137/90 in left arm and 121/79 in right arm. I read online that this could be due to peripheral artery disease, however I'm only 25. Do I need to be concerned or is this normal with dysautonomia?
  12. Hi @Goldfinch Standing BP should always be measured with your arm resting at your heart level relaxed. I learnt this because I did alot of experimenting and whenever I would let the arm hang it would be extremely high eg 150/100 and next minute I took it arm resting at heart level and the BP was 125/85. I suspect I also have a mild version of HyperPots, when I stand up from a sitting position both my HR and BP increase, however its not as extreme as some other people on this forum. I haven't been tested for HyperPots yet because it is very difficult to find a Dysautonomia specialist
  13. I currently use an Omron digital one for the arm. That's interesting to know because if the position is wrong then you can be hypertensive.
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