Struggling - anyone else must keep moving ? in Dysautonomia Discussion Posted June 19 · Report reply Oh love. I hear you on the panic. It feels like a constant battle to keep anything functioning. A foot wrong and it all comes tumbling down - if it wasn't already down there, smile. And the deconditioning happens so quickly, for me it's even a few days. I live in constant fear that "this is it" and that I will remain like this forever or get worse. But we will get better, bit by bit. We have done it before and can do it again. Hang on in there. You're in my thoughts. I know how hard it is, and thank you for giving me support.