Hutch

Call your insurance company and ask there should be a 1800 number on your card.

Did you have lots of bed rest from recovery from your surgery? They say that can cause pots, also depending what drugs you went under, for surgery can miss up the nervous system. People can end up with pots after surgery. Seems you have a lot of possible things that could have triggered it.

Enhanced external counter pulsation therapy (EECP) if you haven’t seen it google it, I believe it could help with pots symptoms. As I was trying see if it has been studyed on pots syndrome, only thing I came across was a small 6 person study for orthostatic intolerance, two people had pots. all 6 people had good results from it. It helps the heart release a hormone that promotes. The growth of new blood vessels in the heart, it also pushes blood to the brain and other organs. Does anyone know if this has been study in larger groups of pots patients? I’m thinking about locating someone. who does it and seeing how much out of pocket. To try it on me, if they legally could.

Do you still have pots?

a hospital I was imminent in that my original ep doctor worked for ordered a 30 day halter monitor, and the original ep doctor had not even checked it, and still wanted to do a ep study. Iv noticed since getting insurance places seem test happy, But I really feel sure a ep study is a unnecessary for me, but I swear the impression these cardiologist give is pots is a mild issue so must be something else going on. But I know that’s not true.

That’s the only way. If your going threw with a ep study, there already in there, so if they found something that needed ablation you’re locked in at that point.

Google ep study they thread a catheter up a leg Vain into your heart, check to see if you have a extra electrical pathway in your heart, if you do they burn it out. You Contradicted you’re self you first said if they keep suggesting it I’d go for it, then toward the end said I personally would shy away from the procedure lol thinking about just flipping a coin

Yes that’s what a ep study is. I am for sure leery of doctors and test as, when you have good health insurance, at the end of the day that’s how they pay there bills, there is people that didn’t have pots but end up with it after a ablation, but I don’t have that worry tho lol I had dysautnomia issues since 15 I’m now 27 that’s Why I’m Leery of it I have so many other wierd symptoms that are there when heart rate and blood pressure are perfect, so I know I have other problems.

So I just seen a new cardiologist today, do to chest pain and shortness of breath. He is aware of pots. I told him about how high my heart rate gets, for instense if I’m sitting a while and get up to pee. it gets 160 if I stand long enough it’s comes down to 130/120 if I take a shower I sit in the shower but when I stand to get out heart rate a lot of times is 190, slowly comes down to 120 140 just depends on its moon seems like. If i sit it comes down fast. To around 95 longer I sit the lower is can get. Well he wants to send me a ep guy to get a ep study. Iv seen one ep cardiologist before this guy. That didn’t know crap about pots and wanted me to go threw with a ep study. I said I’m going to a dysautnomia speachlist first. Witch I did and had a ttt that confirmed pots, and the Nero said I didn’t need a ablation or a ep study I have pots, witch I believe to be the problem, but all these cardiologist iv seen counting one in the e,r witch makes three total say I need it done to rule other things out. But when I say how come it’s only when I’m standing they got no good answers. Another thing iv heard out of them do you exercise are you sure you’re not Deconditioned. witch makes me want to snap. When this started I was working for a Commercial construction company, building 6 story 55thousand barrel whisky warehouses. witch it’s all built out of huge green lumber I was packing lumber that weighed over 100 pounds climbing swinging 10 pound sling hammers pack out stacks and stacks of walk boards that Weighed around 200 pounds one guy on each end these would last three days, every last Thing about it was heavy and hard physical work, also all the flights of steps to get up and down the building. So I was working out hardcore ever d*** day, and just keep getting worse and worse my heart would beat in my throat all day, i was literally telling my self pick your feet up In my hand I stopped talking as I work as I needed the extra air, I finally got to were walking up the steps was all I could do. So forgive me but I know exercise ain’t the fix, if it was I wouldn’t be here typing this. I just want scream like exercise is a cure and we’re just to lazy to do it. Lol but back to my point have you had a ep study? We’re you ever told you needed one? Did you end up with a ablation? are you better or worse now? I’m not scared of the procedure I’m scared I may end up worse then I em, witch I cannot afford to do as I’m pretty d*** near useless as it is. But at the same time I’m desperate to get better,

I feel sick 24/7 some days worse then others even When heart rate and blood pressure are good. It’s because it’s all autoimmune related it’s are own immune system making use feel sick, the heart rate and blood pressure are just symptoms, but if they get for enough out of normal rage they cause symptoms related to them. There’s some good research backing this. How else do you explain the feeling like crap even when your numbers are good and your lying down. I personally think it throws the starving the brain for blood theory out the window,

My stomach was really missed up in the beginning when pots hit me, was going a week without a number 2 I took some medicine to clear me out, then went about a month drinking two ensue drinks and eating just a small piece of chicken plain and I mean small a day, I wasn’t even getting hungry anymore. But I started drinking decaf coffee two cups in the morning, it started getting things moving, to the point I can eat better and take a number two once a day sometimes once every two days. I don’t eat any red meats now and don’t eat any breads, I use to be able to eat anything but now I get easily bloated so it’s just not worth it. It’s also important to move around. Read up on stomach meds before taking anything as they have some nasty scary side effects that can happen. Also no alcohol not even one beer, it also makes things stop. I sure miss be able to have a few beers. But just not worth it.

What do pvc feel like? Do they cause a wierd crawling flip flop sensation in the chest? I was getting a wierd sensation coming from my chest some days and it would drive me nuts,

Have a appointment this coming Monday with a cardiologist that was made three months ago. I hope to get a full work up on my heart. If that checks out i believe it’s related to dysautonomia,

I eat table salt straight and drink nothing but water, 4 to 6 bottles of water a day, not counting one Gatorade I drink when I wake up. I do all I can to feel better but my body just won’t get on board with it. Have you ever tryed oxygen with the shortness off breath? I’m curious if it would relieve the feeling. If it does wouldn’t that mean clearly we’re not getting enough oxygen?

I feel strange while laying down to go to sleep wierd sensation in chest I wonder if I could be having some kind of arrhythmia or stomach problem. For past week I wake up feeling drugged a odd feeling num like and short of breath. I been thinking about going to the hospital, but with all the flu in ky right now. I don’t think it’s worth the chance. Just to get blown off by e.r doctors. I never know when I’m sick making me feel worse or if it’s dysautonomia. so holding out for this cardiologist, I like be sure it’s not heart related. My pots symptom never takes a break. So my heart has seen hours of high heart rate. One thing I do know is I’m getting worse not better, lol all I know is it is what it is, but I’d sure like to know What that is is. Lol