Hello all. I'm new here and newly diagnosed within this last year with a mast cell overproduction, POTS and gastroparesis. Its been an interesting year of trial and error, symptom management, job switching and so much more. I have had a pretty rough summer, got diagnosed with gastroparesis, went on vacation and had a flare up of all flare ups. Ended up in hospital for five days, dry heaving and vomiting so bad I essentially was given phenergan and ativan ever 6 hours to keep me from vomiting and dry heaving. That ended up with me being on clear liquids for almost three weeks, losing 20# and severely physically deconditioning. Since then, its been an interesting ride. But, I have been able to eat most days, have a lot less pain and am tolerating liquids and sleeping better.
However, today I feel like poop! My HR is lower than norm -- in the 60's today and 70's with activity. My normal resting is 80's and activity 90's to low 100's. My orthostatic blood pressures are positive with position change. I am flushed, feel palpitations, I'm dizzy and so tired and brain fog today. I have been drinking alot of water and gatorade. I have not been hungry today. I am off work here at 1:15 and trying to make it until then. It is not normal for me to have a low HR when I'm not feeling well. My hr is still as mentioned above with a high dose of metoprolol. Any suggestions or insight would be greatly appreciated.
Last night I had a glass of wine for the first time in four months, per recommendation of my gastroenterologist. She wants me to try and add some things back, but I felt so sick afterwards and I even sipped on one glass over multiple hours. I was flush, hot, high hr (120's to 140's) and had a lot of abdomen pain and tightening. I won't be drinking wine or alcohol.
Thanks,
Charity