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About cherichair19

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  • Birthday 10/03/1982

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    Well lots of new interests, since my body doesn't agree with my head and heart. I love going to any sporting event, love swimming, boating, the beach, basically anything water related.

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  1. Morning all. I was tested for autoimmune stuff in the past, but not for awhile. I see my drs next week so def will talks to them about it. Thanks for responses and suggestions. I’ve been tracking temps and seem to be temp spike in afternoons, and I’ve been normal in am. Perhaps exhaustion idk. This is all a lot of info and crazy!
  2. Good Afternoon All, I have noticed more fatigue this week and have had a low grade fever of 99.0 mostly. No other s/s. I'm thinking that the low grade fever is a sign of exhaustion? I have had them for years on and off and usually lasts for a couple of days to a week or so. I wasn't diagnosed with everything until a year and a half a go. I have had to switch my job from a floor nurse to a school nurse this year and have found I am quite frustrated, sad, pissed off and so much more. I am loving the school nurse gig, the different pace is much better for me, especially with the lesseni
  3. Hello all those that responded to me, sorry kinda fell of face of earth for a few months, had to take a internet break for a bit. @Pistol I meant with my Orthostatic being positive that my blood pressure would significantly drop with position changes, by 20+ points, which is not my norm. I usually had the opposite of most pots patients and would get hypertensive and not hypotensive. My gastroenterologist was trying to get me to continue to socially drink and keep up some previous behaviors, but my neurologist has spoken with her and told her that alcohol is a no no for my mcad and should avoid
  4. Hello all. I'm new here and newly diagnosed within this last year with a mast cell overproduction, POTS and gastroparesis. Its been an interesting year of trial and error, symptom management, job switching and so much more. I have had a pretty rough summer, got diagnosed with gastroparesis, went on vacation and had a flare up of all flare ups. Ended up in hospital for five days, dry heaving and vomiting so bad I essentially was given phenergan and ativan ever 6 hours to keep me from vomiting and dry heaving. That ended up with me being on clear liquids for almost three weeks, losing 20# and s
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