Caty

Thanks so much everybody! You are so good by sharing your experience and all you have learned along the way. 

I will have an appointment at OHSU in Portland at the Autonomic disorders clinic at some point. They say no sooner than a month. I was thinking about calling other specialists in Washington hoping I could see someone sooner...

A doctor recommended me to use progesterone cream at night. So I did last night and the tachycardia improved, and I wasn’t so anxious in the morning! I will continue to use it and I hope the effect will last.

Here in Eugene OR all specialists I’ve seen have suggested a weird virus messing up things and suggested waiting it out to get better. All labs and studies have come up normal including ANA for autoimmune.

My husband and I have checked BP and HR flat vs standing after 3min. My BP doesn’t change much but the HR always goes up more than 20beats. Would this make a Dx?

My biggies are the extreme weakness/my eyes refuse to open and nausea in the mornings...with anxiety and feeling of complete failure for not being able to care for my family... specially because we homeschool! And the sickness I feel after eating- eyes closing, palpitations, feeling of fullness.

As the day goes by I can get up for some time, do a few chores in the evenings... but I am not eating much because I dread it so... Getting weaker though.

 I was given Metoprolol 10 mg for the night tachycardia but have been afraid to use it... I hoped it would go away on its own... I used to sleep on my left side but now I can’t, it’s like the heart gets squished and doesn’t like it and I am forced to open my chest and sleep face up...

Please forgive me for complaining so... Many of you have had it much harder for years... this is all so new to me...

Blessings to all! Thank you for being there and caring!

Thank you WinterSown it is hard for me to accept this illness. Have you heard of recovery in a short period of time? How can I accept these changes?

 I feel so bad for my kids, there is so much I need to do!

...it’s easier to cry, feel desperate and mad than to fight it, be brave and force myself to keep doing what I can.... it’s just so hard!

Pistol- Thank you so much for your reply! The gastro Dr. says all is nl. He guessed hypersensitivity after a viral infection, but this doesn’t explain the heart symptoms. The heart Dr. said heart is nl. That it looked like I was dehydrated.

Have you heard of anybody with dysautonomia having tachycardia through the night?

Does anybody feel better at certain hours of the day? Or this opposes the dx. Of dysautonomia?

What medication can I suggest the dr. to try? The worst is the terrible anxiety I feel in the mornings...

Please help!

Thanks everybody for being there and please forgive my long explanation.

 I am 41 yo. mom of 4 and for the last three weeks I’ve been going through some scary symptoms. It all started with esophageal spasms. I’ve suffered from GERD and severe belching for many years, but they suddenly worsened and my esophagus started acting up. I took Nexium (which I had never used before) and experienced tachycardia at night that wouldn’t go away, anxiety and nausea. Went to the ER and all was normal except a heart rate of 130 and low grade fever. I stopped the Nexium but the tachycardia and pounding HB continued every night and every time I ate. I became extremely tired during the day. During meals I would feel full and nauseated after a few bites, my heart will pound or I would get tachycardia, and felt like I was exhausted. Lost 10 lb and had to get IV fluids.

 Now I have labs (thyroid) an echocardiogram, an endoscopy, gallbladder and pancreas all normal.

This is how it is right now: The moment my body relaxes to fall asleep the tachycardia begins and I get this reflex to swallow which scares me. I am anxious with sudden noises also. 

In the morning when I am awake the tachycardia stops but I feel nauseated, extremely tired and very anxious- thinking I may die soon.

If I stay in bed, symptoms are not as bad but they are still incapacitating specially after the meals.

The strange thing is that at night, after digesting dinner I have a surge of energy. I finally feel myself, the symptoms almost go away and I can think clearly. I feel so embarrassed with our friends that are helping us because at night it looks as if I was faking an illness during the day... they suggest anxiety or depression.

I read the symptoms of dysautonomia and they explain the way I feel. But how can I explain feeling well in the evenings?

 It is a terrible roller coaster because every night I think I am certainly getting better but the moment I am falling asleep the tachycardia comes back and the mornings are terrible.

Please tell me what you think.