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Pippie

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  1. Pippie

    Symptom cycles

    Mine fluctuate between one week of waking up with sinus tachycardia feeling tired week. Then I have patterns of severe GI issues sometimes with or without heart palpitations. I’ve lose half of my hair in the last year and I feel like I’m not absorbing nutrients. Latest new symptoms have been dull achy feet and legs as if I’ve been on my feet all day, but the pain starts an hour after I wake up. I’m pretty confined to my house lately as my energy is very low. I’m only 42 and I feel like crap.
  2. What foods have electrolytes? You mean like bananas? I’ve been literally drinking electrolyte ( like pedialyte)
  3. Pippie

    New symptom - waking up with very high HR?

    I go in patterns with the sinus tachycardia. Mine also happen first thing in morning. Going up to 150bpm just STanding to brush teach. I went thru a bad episode a couple of weeks ago where it lasted one whole week, happing each morning. Now it’s gone away (for the time being). I do feel for me there is a huge link with my GI System. I too am feeling week, legs have been hurting and low back pain too. You may want to push for a 21 or 30 day haltor monitor. This will track your episodes and give you peace of mind. I had a 21 day monitor placed on me and I did have heart palps that were recorded, but they came back as normal sinus tachycardia
  4. So I’ve been getting progressively worse since March 2017. 42 yr old female. Prior to this no issues was healthy and working out regularly. My symtoms: heart palps (not always. Comes and goes in patterns. Mostly in mornings. Always have to lay or sit down when they occur and can last 1-2 hours lightheadness feels like I’ll pass out, but have not yet. Back pain/lower leg pain as if I’ve been on my feet all day. This starts within an hour of being up after sleeping well all night tired all the time I’ve noticed that when all these symtoms come on, I have to have ice cold water and place ice on my face or neck to keep from feeling faint GI issues started beginning of this year with something stuck in throat, feeling of fullness, heart burn. These symptoms went away then lower GI symptoms started. More frequent BMs 2-4 a day. With texture of BM changing on me. Tests done: endoscopy, colonoscopy, CT scan of abdomin, sibo breath test, stool tests, lab work to full out neuroendocrine issues, thyroid issues, heart issues, Lyme disease, infections etc. full cardiac work up including echo, dozens EKGs ( due to heart palps), 21 day heart monitor, brain MRI a year ago. All tests came out normal. Question: do any of you feel your Dysautonomia is related to your gut? I have always felt that when I have to pass gas or go have a BM, that’s when I get feeling of being faint, light headed and weak. I’ve tried going dairy free and significantly reduced my intake of beans and gluten but I’m not seeing a difference. I have an appointment with an autonomic clinic in December.
  5. Congrats! I’ll definitely email you for questions
  6. @WinterSown and @Pistolthe GI symtoms just came out of no where this year. That’s why it’s harder to come to terms with things because I’d never had GI issues before. Always at a healthy moderate protein, veggies, and whole grains diet with good fats and fruits. I’m at that phrase right now where I’m trying to get the doctors to rule out all the other “serious” stuff it could be. Sometimes I wonder if it’s something more serious and they are not finding it yet. But then I console myself and say that if it was serious I’d have a lot more crazier symtoms. Did you guys ever get full low back pain that would start in morning? Almost feel crampy like? The G.I. doctor says it’s probably abdominal pain being referred to my back
  7. Pippie

    Surges

    Yes, this happens to me to. I get woken up by this feeling like I’m hot and about to faint, then the heart palpitations kick in and the heart will go as high as 160. I usually have to sit up and start taking deep breaths. My husband gets me a ice pack to put behind my neck and on my face and I drink ice water. I’ll also feel my stomach churning. I feel you. It’s the most scariest feeling in the world. Your stuck between calling 911 or letting it ride itself out. I pray that one day we miraculously recover from this
  8. Thanks for the reply 😀 i finally am being referred to Stanford autonomic disorders clinic here in the Bay Area, they will hopefully do all the testing. Some times it’s really bad because the feeling that I’m getting, lightheaded and hot sometimes with heart palps comes on when I’m driving, then I have to pull to the right, crank up the AC and take deep breaths. I haven’t actually passed out....so far 🙏🏽. But like I said quite often when I have this feeling, I feel my stomach churning, moving.
  9. I’m posting this in hopes some of you have same symtoms as me. My whole life I’ve been very healthy worked out 4-5 x a week including hiking, kickboxing, running and I ate very well never had digestive issues. My symtoms literally stated in March of 2017. I was sitting and went into sinus tachycardia. When my heart rate eventually went to 178 I ended up in the ER that night. They didn’t find anything and the MD said it could have been a viral effect since I had been fighting a viral cold/ sinus congestion for three weeks. I didn’t think anything of it and went on with life. But little did I know this was the beginning of Many symptoms to come. After this episode, I started experiencing waking up at night hot, sweating, heart racing. Then I had an extreme episode on a plane in air where I was sleeping and woke up feeling very hot, i ending up passing out and urinated on myself in the process. When i regained consciousness I was surrounded by my family and the airplane staff. I was very dizzy , lightheaded and had palpitations the rest of the flight. I decided to get a full check up after this episode. CT scans, MRI, 21 day heart monitor, heart echo, and extensive blood work and all they could say is that I was having heart palpitations but they were not dangerous. My symtoms would come and go in patterns. I’d be fine for a while, I’d get encouraged and start working out again and then boom!, another episode of heart palps leading me to urgent care. The bizzare thing is that I’ve noticed that every time I feel lightheaded or hot, I notice I almost always have to release gas or have bowel movement. Everytime I would mention this to the doctors they would just look at me confused. Then the GI symtoms started, indigestion, nausea, diarrhea, urgency for bowel and urine, low back pain. Sometimes accompanied with feeling hot, lightheaded and having heart palps. So my GI work ups started with endoscopy, stool tests, blood tests. MD officially diagnosed me with IBS. I’m also scheduled for colonoscopy, but I think my MD is doing this for my peace of mind. Last week was the worse, waking up in middle of night feeling hot then heart rate going to 160. Sometimes it happens upon waking up, feeling lightheaded, warm, racing heart. Then heart rate remains 120-130. Some mornings I have to spend in bed until these feelings go away. My resting heart rate can range from 56-78. But my symtoms are intermittent. They come and go. They have also tested me for neuroendocrine issues, all normal. I’ve gone to my obgyn to rule out uterine and ovarian issues and all normal. I’ve been to a functional med doctor who found my ferritin and vitamin D levels to be low. Now on supplements but no difference yet. I’ve been gluten, soy and dairy free for three weeks with only minor improvements in my G.I. symptoms but I’m still pooping three times a day accompanied with feeling faint. I hate my life. I was I could be 39 forever lol. Have any of you had GI symptoms with POTs? I’m not officially diagnosed yet, but a lot of people and doctors have suggested the possibility. Next step is referal to a renowned autonomic disorders clinic here in my area.
  10. Wow this sounds like me. My whole life I’ve been very healthy worked out 4-5 x a week including hiking, kickboxing, running and I ate very well never had digestive issues. My symtoms literally stated in March of 2017. I was sitting and went into sinus tachycardia. When my heart rate eventually went to 178 I ended up in the ER that night. They didn’t find anything and the MD said it could have been a viral effect since I had been fighting a viral cold/ sinus congestion for three weeks. I didn’t think anything of it and went on with life. But little did I know this was the beginning of Many symptoms to come. After this episode, I started experiencing waking up at night hot, sweating, heart racing. Then I had an extreme episode on a plane in air where I was sleeping and woke up feeling very hot, i ending up passing out and urinated on myself in the process. When i regained consciousness I was surrounded by my family and the airplane staff. I was very dizzy , lightheaded and had palpitations the rest of the flight. I decided to get a full check up after this episode. CT scans, MRI, 21 day heart monitor, heart echo, and extensive blood work and all they could say is that I was having heart palpitations but they were not dangerous. My symtoms would come and go in patterns. I’d be fine for a while, I’d get encouraged and start working out again and then boom!, another episode of heart palps leading me to urgent care. The bizzare thing is that I’ve noticed that every time I feel lightheaded or hot, I notice I almost always have to release gas or have bowel movement. Everyone I would mention this to the doctors they would just look at me confused. Then the GI symtoms started, indigestion, nausea, diarrhea, urgency for bowel and urine, low back pain. Sometimes accompanied with feeling hot, lightheaded and having heart palps. So my GI work ups started with endoscopy, stool tests, blood tests. MD officially diagnosed me with IBS. I’m also scheduled for colonoscopy, but I think my MD is doing this for my peace of mind. Last week was the worse, waking up in middle of night feeling hot then heart rate going to 160. Sometimes it happens upon waking up, feeling lightheaded, warm, racing heart. Then heart rate remains 120-130. Some mornings I have to spend in bed until these feelings go away. My resting heart rate can range from 56-78. But like you, it’s intermittent. They have also tested me for neuroendocrine issues, all normal. I’ve gone to my obgyn to rule out uterine and ovarian issues and all normal. I’ve been to a functional med doctor who found my ferritin and vitamin D levels to be low. Now on supplements but no difference yet. I’ve been gluten, soy and dairy free for three weeks with some only minor improvements in my G.I. symptoms but I’m still not pooping three times a day accompanied with feeling of feeling faint. I hate my life. I was I could be 39 for ever lol. Have any of you had GI symptoms with POTs? I’m not officially diagnosed yet, but a lot of people and doctors have suggested the possibility. Next step is referal to a renowned autonomic disorders clinic here in my area.
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