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FileTrekker

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About FileTrekker

  • Rank
    Advanced Member
  • Birthday February 2

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  • Gender
    Male
  • Location
    United Kingdom
  • Interests
    Gaming, Railways and Tech.

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  1. FileTrekker

    ER Monitor scared me!

    Weird. Were you being transcutanously paced at the time? "Pacer nt pacing" should not show up unless you were which would imply the monitoring equipment was funky.
  2. FileTrekker

    Taurine for PVCs

    Has anyone tried Taurine for PVCs? My PVC's were at a pretty consistant 1,000 a day, but randomly on Sunday, possibly due to switching brand of Magnesium supplement, they have now doubled to 2,000 a day and I'm getting between 2 and 7 PVCs every minute. So I decided to bite the bullet and try taurine. I'm on my second day now and while the PVCs are MUCH softer now, their frequency has not actually changed, still around 2,000 PVCs per day. I feel better overall, though, slightly more relaxed and as I say the PVCs, while still noticeable, aren't punch to the chest horrible like they were. Just wondering if other people had experiences? I tried L-Arginine as well on Monday but I'm stopping that after one dose as I'm pretty sure all it's done is make my POTS worse, my tachy was worse and I felt pretty flushed, I believe it can actually dilate blood vessels.
  3. Yup. Sitting after standing causes a relatively quick drop in HR and the ectopic beats are usually bad for around 5 to 10 minutes following, and the coughing comes along because of the ectopics.
  4. FileTrekker

    Can we get a chatroom?

    I agree a live chat would be cool. Like a Discord or an IRC or something like that.
  5. FileTrekker

    Low Magnesium (Anybody?)

    You don't want to be taking loads in one go, and supplement is just that so maybe add a bit of dark leafy greens in or whatever too. Magnesium Citrate works good though.
  6. It's not just women, A&E also haven't got the first clue and always think I'm a basketcase with anxiety problems. A&E isn't really equipped to deal with dysautonomia though and they will rarely have heard of it beyond the odd mention of it. They certainly don't look for or treat it. Also in the UK.
  7. FileTrekker

    Survey for POTS members

    How long have you had POTS ? 5 months Has the symptoms got better since you 1st got POTS as time went by ? No How much are you able to do ? (Drive, stand, walk, shop, get out and about) ? I can stand, walk, get to work, sometimes I can go out socialising but these things depend on the day. What are your Pulze and BP readings ? Sitting / lying between 50-70bpm, standing between 100 to 140bpm, again varies. BP is usually around 115/75 but goes up and down a bit.
  8. FileTrekker

    Low Magnesium (Anybody?)

    Honestly try it anyway. Blood mag levels aren’t even a good indicator. It does no harm to give it a try. I find it helps massively.
  9. FileTrekker

    Low Magnesium (Anybody?)

    Yeah, I take mag supplements too. Most people don't get enough magnesium anyway because of processing of foods and so on. So it's not unusual to have low mag. But I guess there must be something that makes potsies more suceptable to it I guess. Digestion or whatever. So yeah magnesium citrate suppliments I find are useful. Check with doctor first though. Don't get Magnisum Oxide as they dont absorb well.
  10. FileTrekker

    Heart skips a beat...

    Thats good! Well, it isn't but you have a solution at least. Start eating more dark leafy greens, salmon etc or see if your doc is happy for you to try 200mg Magnesium Citrate.
  11. FileTrekker

    Right bundle branch block?!

    Well I am sure your cardio will follow up but try not to worry, RBBB is usually not serious. The diagnosis should be confirmed by your cardio because it seems unusual it's not been picked up on EKG before. The prognosis is generally excellent either way in my opinion.
  12. FileTrekker

    Cool little gadget I just got

    There are some limitations to single lead ECG / EKG but they're used even in mainstream medical practice, single lead event recorders for example are extremely common. This isn't intended to replace a full 12 lead ECG / EKG by any means but it does provide useful insight for you and your cardiologist into arrhythmias such as PVCs. As someone who knows how to interperate an EKG I am sure you can look at the readings above you would agree no doubt completely that the events I have circled are exactly what I say they are and are how they would appear on any typical EKG readout. You do need to consider interference when moving for example, which makes it harder to distinguish P and T waves, but it does have some value to show your cardiologist. I got one on the suggestion of Dr. Sanjay Gupta who is a pretty renowned cardiologist here in the UK.
  13. FileTrekker

    Cool little gadget I just got

    Thanks. Yeah, that's why I went with it too, partly because I knew what I wanted to find out and how to read the ECG enough that I didn't need to pay a subscription to 1. use the device and 2. get someone else to look at for me, and also, it's useful to record events to show to my regular cardiologist or to email off to him, so it's a no-brainer for me to not be paying all that money every month just to use a device I bought myself. It's shocking to me that if you don't pay Kardia's fee, you can't use your own device *at all* - even for your own offline readings. This lets you do whatever you want.
  14. FileTrekker

    Pee

    If it's orange all the time, then it's more worrying than if it's orange just in the morning - which is a normal finding AFAIK - so, mention it to your doctor but honestly it sounds like nothing unusual.
  15. Not strictly dysautonomia related, except for a lot of us have irregular heartbeats or tachycardia, but I thought I would write about it cause I find this little gadget I bought today pretty cool and, being a nerd, I'm starting to enjoy and take an interest in learning about the heart..... who'd have thought.... Anyway, it's called a SnapECG, and it's a little Bluetooth device that fits in your pocket and you can use it to record an accurate, single lead ECG any time and any place on your phone. It's similar to another device called Kardia but it's about £10 cheaper (cost me about £85 UK) and it has no subscription fees so you can just use it whenever you like without paying extra. It does not have the service where you can send your ECG off for analysis, however, you can download, email, and send your ECGs as PDFs or JPG images to your cardiologist or doctor. So, the device is pretty tiny, fits in any pocket, how it works is you place two fingers from each hand onto each of the electrodes, then download the app that it uses from the iOS / Google Play store and as long as Bluetooth is turned on, you can use the app to record a single lead ECG either 1, 3, 5, or as many minutes as you want long. It works really well, although it is a little sensitive so moving around too much will trigger anomalies, as will having it too close to electronics, so for example when I put it near right near my laptop it went haywire with constant lines going 5,000bpm lol. However as long as you stay still enough and don't have It near any atom bombs or sources of electrical interference it works pretty well as a simple 1 lead ECG. The app lets you export the results as PDFs or JPG images. What it WONT do is try and diagnose anything. So it wont, like a hospital ECG machine, try and do any auto diagnosis. It simply gives you the raw readouts to give to your doctor or medical professional to check for you. There are also online services who will check them out for you, though. However, with research, you can figure out for yourself what a lot of these things are and what a normal ECG should be like. Here are two of my recordings, which I did to try and get to the bottom of what I have been feeling lately. So here's one I did, which shows 3 PVCs in the course of one minute. The bit circled in red was me moving around so that is just an anomaly I believe. You can tell these are PVC beats (premature ventricular complexes) as the QRS complex is very big and wide, with no P wave or T waves. The good news for me is, so far, I have seen a fair number of these AND - they all look the same - which means they are all being triggered by the same place in my ventricle - so unifocal PVCs. These are less sinister than multifocal. SCORE. Here's another I did, which captures another odd feeling I had been having, which felt like two PVCs together. What's this... only ONE PVC??? So why did it feel so odd. Well, turns out this is an interpolated PVC. You'll notice, unlike the 3 examples in the other picture, this PVC has no compensatory pause and is sandwiched smack bang between my two normal sinus QRS waves, this is why I felt odd for two beats, both the PVC and the normal sinus beat after it both had half as much blood, and I am feeling the squeezing weak beat. So I am pretty happy as both these are less sinister findings than what I feared I was going to find - multifocal PVCs or PVC couplets. I'm pretty impressed and - dare I say it - having fun with this neat little gadget. It may be useful to many on here though as it would show when you, for example, are having an AF attack if you suffer from AF, or have any other heart rhythm issues, or even just to get a more accurate heart rate.
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