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Yulunga

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Everything posted by Yulunga

  1. Actually, I asked the Dr if he could test me for hyperadrenergic POTS, and he ordered the blood test. When I asked him if it would be the catecholamine test he denied and said he would like to do this (cortisol) test first. But now he wats to do the 24-hour urine collection, and yes, I will ask him to check my catecholamines as well.... I didn't know that there are various causes for POTS and that they can be individually diagnosed--thus, I thought a treatment is based on dealing with the symptoms instead of attacking the cause! That sounds great! Means there's reason for hope! I hope y
  2. Yes, I'm hoping that there is another, rather "harmless" underlying cause for my symptoms. But I almost believe that the results just reflect the stress I had the night before they drew my blood--I wake up almost every night with a racing heart and dizziness that can sometimes develop into a panic attack... But who knows? I'm sorry that you've made the experience that your doctor, the person you rely on, refused to help you when you felt helpless! Having this condition is already creepy enough...! So far I'm lucky that I've met only supportive physicians (except for those neurologists, o
  3. Thank you all for your replies! It feels SO good to know that you're not alone...!!! I actually didn't get any meds during the TTT, but they were supposed to give me something IF nothing would happen after 20 minutes. So, I collapsed right before that! I find it interesting that the procedure for a TTT can vary! Yes, you're right, I should jot down all my questions and talk to the cardiologist who evaluated my test. I'll do that! My family practitioner has never heard of POTS when I asked her for a referral, though, and the Dr. I had my follow-up appointment with (my family practit
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