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Pharmgirl

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About Pharmgirl

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  1. Thanks - how long do you remain in each position before changing??
  2. I'm wondering if anyone has ever used a BP cuff at home and done their own version of a tilt table? I don't have a diagnosis, but it seems like it would be fairly easy to recreate a laying to standing scenario at home while measuring BP and heartrate? Am I missing something that they do that I wouldn't be able to see? A specialist will be a wait I'm sure, and I'm just trying to rule things out in the meantime on my own! Thanks.
  3. Thank you everyone. He prescribed the metoprolol ER and I still haven’t started it. Strangely today my heart rate was totally normal all day...it’s almost like it gets tired and gives me a few normal days. I totally understand nobody can give me a diagnosis. I just don’t know if I’m in the right place, but it seems like it. I’m afraid of scheduling a tilt table because I’ll probably not have bad symptoms that day! My biggest issue now is being lightheaded....but my vitals were ok today. Like 120/80 and 75 pulse. Not sure why I’d still have symptoms with the normal vitals. Ugh.
  4. I stumbled upon this forum and think I may have found my people! I know many can relate to the frustrations of many doctors visits with no answers, and that’s where I’m at. Something has been going on for a year. I’ve been to the ER twice with sinus tachycardia (120-130) with very little exertion and subsequent shortness of breath. I’m usually in good shape, but on a bad day, going from seated to standing at church makes my heart go from 80’s to 110. Climbing 8 stairs makes my heart do the same most any day. These episodes used to last a week or so and then I’d have some better days. Now they’re everyday. I gave up coffee for the tachycardia but broke down and had some yesterday and actually felt better. I also will sometimes just be laying in bed in the mornings and feel like adrenaline is coursing through my body. Like my alarm will go off and shoot my heart rate to 100. My sleeping heart rate is consistently in the 60’s. I wear an Apple Watch to watch the crazy highs and lows of my days. All my blood work, echo, stress test, etc has been ok. I’m in the Kansas City area and don’t think there are any POTS specialist in the area so I’m not sure what a good next step would be. I feel like I’m used to the crazy heartbeat, but the shortness of breath is what bothers me the most. I’ve had a chest CT and been to a pulmonologist who just said he doesn’t think this has to do with my lungs. My BP and heart rate are always in an inverse relationship with each other. Higher heart rates with more normal BP’s and vice versa. Cardio just gave me metoprolol but I’m afraid to start it. Wondering if I should have a diagnosis before treating?! Thanks for following this far! Any suggestions, advice? Does this even sound like POTS?
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