Dysautonomia Zebra

I have been getting low ferritin results (not anemic) for years. I take the supplements and then months later back at the doctors for blood tests because I can feel that its gotten low again - I can just sense it. It does make my symptoms worse, especially the fatigue and brain fog. However, the dysautonomia symptoms are there whether the ferritin levels are low or normal - no improvement for me. No matter how much iron I eat in my foods it doesn't seem to help keep my ferritin levels up. However, I still recommend trying to get as much of it from your diet as possible as it's not great having to rely on supplements all the time, and as others posted, have vitamin C to help you absorb more iron.

I always thought I needed compression stockings, but for some reason, my specialist was against it. I'll bring it up again next time I speak to them. I have enough salt, I will up my fluid intake. Its good to hear all is not lost, maybe I just need a combination, instead of just ivabradine alone. Thanks

Hi all, I was diagnosed with Dysautonomia about 5 months ago, but before that, the GPs had already realized I had a crazy fast heartbeat on standing so had put me on Bisoprolol. This wasn't helping me enough so my specialist got me to try Ivabradine. I had read online about how for some people this was a magical drug when suffering from POTS so I was really hoping it was going to work. I started on 5mg (2.5 in morning and 2.5 at night) I didn't really feel much different, just a little clearer in my head, but still had the tachycardia going about 150 beats per minute on standing. It is a long travel to my dysautonomia specialist, so she discharged me with the instruction to double my dose to 10mg (5 in morning, 5 at night), having full faith in the drug that it would calm my tachycardia. However, this is not what has happened. The Ivabradine has changed my resting heart rate from about 95 to 68. BUT, when I stand up, its the same as always, going up to 150 beats on standing. This isn't normal, right? haha. I will have to get back onto the phone to my cardiologist. She seemed pretty convinced this was the fix, and I'm pretty disappointed. Has anybody else had this kind of experience with Ivabradine, and if so what helped you after that?

I too suffer from extremely dry eyes and dry mouth. I used to wonder if I had Sjogren's before my Dysautonomia diagnosis. Now I just accept it as another symptom on the never-ending list of the condition, although it might be a side effect of a medication. My specialist, however, told me that we Dysautonomia sufferers need to drink more water than the average person (which I know I should do, but currently don't), so maybe that would help.