Oceank316

Hi all I have H-POTS diagnosed 4 years ago. Also have MCAD and EDS (joint involvement) I taken 80mg of propranolol 3x a day, 50mg benadryl, 150 zantac, Tylenol. But I am lookingto find some recommendations to help control the MCAD better. I've been reading abour Rydapt if any have any usage experience there. Also for the POTS I have terrible excessive sweating problems which of course makes the dehydration worse making me feel worse. My brain fog and exhaustion is getting worse too. I feel like we've just been keeping it somewhat stable but I still end up in the hospital too often on fluids and such and I'm getting dizzier than I used to. Any ideas on med additions I can discuss with my doctor would be appreciated. I could really use some help from others that go through this because even with good doctors they still don't fully understand it. I am also a registered nurse so it had given me the ability to advocate with my docs who trust me pretty well on the treatment. Side question does anyone have issues with slow metabolism due to the POTS or MCAD? Thanks all