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Christine

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  1. Hello, I too had a spinal tap because they thought I had MS. It was helpful because they were able to rule out a ton of diseases. Good luck, Christine
  2. Hello, I had a tilt test and a drug added to it via an IV. My doctor wanted to see my response as if I just got done running or something physical. Let me tell you it was awful. My heart was jumping out of my body and I could not even complete the test. They began to stand me up and my body reacted so badly they had to stop the test. I hope you feel better soon, Christine
  3. Hi, I have Hyperadrenergic POTS. I had a test done for this at the Cleveland Clinic. When this happens to me I can tell you it is different from my other symptoms of POTS. I get really emotional and I usually cry, I have trouble standing, I usually feel I am going to get sick. It almost feels like I drank too much alcohol. If I do not lay down, I will pass out. It is the worse feeling I have ever had. This response is differnt from my everyday symptoms. My everyday symptoms are not as urgent. When I become hyperadrenergic I feel like there is nothing I can do. This is when I want to go to the hospital and check in. Christine
  4. Hello, I too have been told I am hyperadrenergic. Usually it happens when I put too much strain on my body. Either physically or I am just stressed out. My heart rate increases and my blood pressure drops. I get dizzy and nauseated. I feel like my heart is jumping out of my body. I have body twitches the whole nine yards. When I have a bad attack, it will take days to go away. I have learned to try and control it and listen to my body. When this happens or I know that I have a chance of this happening, I change my rountine. For example, one of our good friends daughter died after Christmas last year. My husband and I are her Godparents. I knew with all of the emotions, family, funeral etc.. I my body would be shot after the funeral. I was on my feet for hours at a time. I did make it through the 3 days of sadness but they my body gave out and let me tell you I was in so much pain and I became really sick. Good Luck, Christine
  5. Thanks for everyone who has responded. Now, I don't feel like I am crazy. Sometimes I wonder!!! Take Care, Christine
  6. I notice a decline in my body temp. when I am not feeling well. I was just wondering if anyone else has noticed this. I might contact my doctor. Even when I am feeling hot, my temp is low. Thanks, Christine
  7. I hope you continue to feel better. I have my good and bad days too. Sometimes it takes all of my energy just to get out of bed. Good luck at the doctors. Christine
  8. Hello, I have POTS and I was wondering if anyone else has a low body temp.? When I become symptomatic my body temp. drops. I will welcome any advice. Thanks, Christine
  9. I use a pill box and I also set my watch. Now, it is just out of habit. Best of Luck, Christine
  10. Now, that might make sense. Not having enough oxygen to my brain. Maybe that is why I feel like I had too much to drink. Christine
  11. Hello, Thanks for writing back. It makes me feel a little better knowing that I am not alone on this one. I guess I was wondering what could be causing this type of symptom???? Any ideas? Thanks, Christine
  12. Goodluck, Lukky. I understand completely about doctors in one ear out another. Their ego does tend to get bruised when you actually know something they do not. Take Care, Christine
  13. Hello, Sometimes, I feel as if I am drunk. (No, I haven't been drinking Ha-ha.) I am not currently taking any medication because we are trying to have a baby. I know it may sound strange but that is the only way I can describe how I feel. I get very very happy and ofcourse my balance is completely off. My vision becomes very odd and things in the environment seem to be popping out at me. Colors seem to be more bright and it feels like I am on top of the world. When this happens to me, I try not to drive and do anything that I would have to concentrate on. I have to know if anyone else with POTS experienced something like this? Thanks, Christine
  14. In my case I feel like I live on a constant roller coaster. Sometimes I am great and I just loose my balance a little and other times I am on bedrest. I do know that I my body does give off symptoms and I have learned to listen to my body. I also learned that my body tends to cycle. I agree about doctors in general. I have had my share of doctors who think that I had a mental health issue. I am so happy that I have found out that I have POTS because I now know that I am not crazy and the doctors were wrong. It is a very good feeling to know this. I always have pleasure in knowing that I know my body better than they did. I have been dealing with POTS for over 11 years and now I finally feel as if I understand. Best luck to everyone! Christine
  15. Hello, Via my doctors, I am not allowed to take any over the counter meds or any other prescription meds unless approved by them. I am only allowed to take tylenol and on rare occasions advil or motrin. They told me that the meds would increase my symptoms and many tend to drop a person's blood pressure. Christine
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