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About mymyjazz

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  1. Thx! I haven't done a TTT, but my cardiologist checked HR and BP laying down, sitting, standing - and noticed a large enough increase that it def. wasn't normal and very close to POTS numbers. He doesn't believe in doing the TTT if he is confident of his diagnosis from symptoms and the few numbers he gets. I def. have the symptoms. I have never completely passed out, but come very close - especially in heat. Failed stress tests but the echo-stress was normal (plus the zillion other cardiac tests I have had over past 4 years). Soo dizzy constantly, with brain fog, chest pains, occasional shortness of breath, etc. Salt does usually help, which is another reason why they are confident this is POTS (or a type of dysautonomia). I just started Bystolic to see if it helps. I have had daily life impact recently from constant nausea and increased fatigue. So far I can't tell a difference. I've been on it for ~2 weeks, and yesterday I had mostly very high BP. No idea what caused that. It was ~156/70 most of day, interspersed with low numbers. HR stayed ~60. Today I am back at my standard 95/61 BP most of day. I also tried Florinef in the past, but was allergic (so sad, as I felt AMAZINGLY energetic). Hoping to level out and feel better soon. Hot summer weather is not our friend!
  2. I do fine on airplanes, but I live in the foothills - outside of Denver. Every time I travel to lower altitude and return, I have a few days of adjustment with mild symptoms. As everyone mentioned - hydration/salt. EmergenC is very helpful also in alleviating very mild altitude sickness issues. A physician friend of mine told me that it is comparable to what they give their patients. You might want to start taking it prior to your travel and while you are in altitude. Be careful with exertion. I have had my worst episodes when in higher altitudes in the mountains - doing fairly easy hikes. Don't push yourself.
  3. I have been diagnosed with Dysautonomia - likely POTS (so two cardiologists say), though I don't fit the exact diagnosis requirements for POTS. I notice that, while cardio-type exercise causes a large HR spike for me (and symptoms later that day/the next day) - I often feel horrible and my HR is stable. My BP, however, will be fluctuating during those times. My symptoms often include dizziness, brain fog, nausea, and sometimes leg pains at these times. Just wondering if this sounds like POTS, or possibly a different type of Dysautonomia? And has anyone found a way to help stabilize this? And how does BP fluctuate without a corresponding fluctuation in HR? Curious. Thank you!
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