Rvnhawk

First time poster here- been seen by a cardiologist for POTS-like symptoms, had a cardio workup, with tilt table test which showed HR went from 90s to 130s and BP went up to 147/55. Cardiologist report seems focused on my BP not dropping, but the PA I saw for follow-up advised if Gatorade and compression tights helped it would help reinforce POTS diagnosis. This cardiologist sees POTS completely as a diagnosis of exclusion. He is also supposed to be one of the best cardiologists in the area (and I drive over an hour one way to see him). I live in a very rural area. I do have MCAS and EDS. (I drive 2 1/2 hours one way to see my doctor for MCAS). I have tachycardia nearly the entire time I’m upright and POTS symptoms of dizziness, near syncope, brain fog, fatigue and weakness, flushing and heat intolerance. The cardiologist is just “monitoring” this at this time, along with mildly elevated BP. I rarely have hypotension, but it is running a little lower now that I am drinking Gatorade often. This was suggested by the geneticist I saw for the EDS diagnosis. I believe he saw the tilt table results (same hospital system so he had access and seemed to be reading a report during our visit) and said it would help my blood flow re: EDS collagen malfunction in vessels and my POTS symptoms. I had not mentioned my POTS symptoms to him. The cardiologist did say he’s concerned about what medications he’d even be able to prescribe for my tachycardia because I have MCAS - I haven’t been back since the EDS diagnosis. If he continues to be reluctant to prescribe anything, my GP has said she will because she is concerned about problems down the road from the continued tachycardia. So I guess my question is, what medications should I suggest based on other people’s experience who have MCAS and EDS?