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FallynPixie

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  1. I did the 24 hour Holter Monitor from my cardiologist, and he said my heart was good, so the problem isn't from that. I think if i would done a 30 day monitor would have shown a little more.
  2. I had my first black out when I was 10. I was riding a scooter with my friends, and crashed for no. No rocks or cracks in the rode, but i scrapped my chin as a result. Got up and didnt think about it again. I had a couple more while I was riding my scooter when I was 11, but they didnt happen all the time, so again I left it alone. As my teen years hit they became more frequent, and I didnt have a clue in the world how to tell anyone what was going on with me. Just before i turned 24 I went to my primary care doctor, told her I have black outs, and she told me I was hypoglycemic, and if it gets worse we will go from there. I noticed other things wrong like my stomach has issues, and trouble sleeping, and other pain/joint pain. I have blacks outs daily, but i carry through the hardest days of fatigue and pain. I've never had a job so when I took 40 hours of volunteering a week, at first it was ok, but i had side effects. Less than 3 months working full time I had a black out that I didnt recover from as fast, it was harder than normal. I made my doctor state I need glucose tabs so I could continue volunteering, since I figured it was just my hypoglycemia kicking me that day. So after all that my primary care finally referred me to an Endocrinologist, like she should have done at my first visit. The Endo ordered a 3 day fasting, and i ended up doing that twice. I luckily found the right person here, cuz the doctor that gave my results for the test said my hypoglycemia was within reason, but it still doesnt explain the blackouts. As I gave him more information, he said that sounds more like "POTS." He explained what POTS and gave me a referral to cardiologist. After 17 years I had an answer. The cardiologist agreed with the Endocrinologist, and the Neurologist couldn't rule it out cuz I didn't have a result with the Tilt Table Test. My primary care doctor had told me she hoped the specialists could help. So when I went back to request a different doctor she thought I was trying to order another test. So I'm stuck at needing to find a doctor who knows more about Dysautonomia. My primary care also said Dysautonmia is a word she hadn't heard in a long time. It was great getting an answer but I'm still at square one trying to find a doctor in the worst place(california) that takes my crappy insurance. My PCDs know nothing and im not sure what to do.
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