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2sick2long

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  1. Can I ask how you found out that you had this ear tumor? What symptoms prompted your doctors to check for something like that? How are you worse now than before? I need testing to check for this too. I’ve had tinnitus since I was 12 or 13, though and nobody knows why.
  2. There are no experinced doctors in my area to diagnose dysautonomia. I have had symptoms since I was a teenager and possibly earlier. However, I also have stmptoms that probably are not associated with it. I have had tons of testing in the past and nothing was found. I have aleays had dizziness/vertigo. Last year, I was bedridden for 4 months. I noticed my beta blocker was making iy worse, so I stopped it. The problem improved until February. I’m now back to being incapcitated. I am slo experiencing what may be POTS. When I bemd over or crouch down, I get very dizzy when I stand up. Sometimes just a quick head movement causes the same thing. In addition, I’m experiencing the same thing when drying my hair. I say dizzy but it may actually be vertigo. I need to have an MRI but I can’t because of the dizziness. I don’t want contrast either because I don’t need any more problems than i already have. I can’t function. I’m basically a shut in. I don’t know what to do. I take Meclizine but it does’t help much and it does NOTIHING for the dizziness upon standing or bending over. Does anyone else experince this or have chronic dizziness/vertigo?
  3. I’m new to this forum. I started having all kinds of unexplainable aymptoms when I was 14. I had frequent episodes of feeling faint, a lot of nexk pain, dizziness and other symptoms that son’t really for the peofile foe this illness. For a while, I was a lot better for no apparent reason. At 21, I developed “idiopathic” tachycardia, before I even knew what dysautonomia was. I was on a beta blocker and was okay for a few years. At 27, I began feeling sick, especially in the morning, after earting. For some reason, I could no longer tolerate carbohydrates in the morning. However, whenever I ate, I’d get tachycardia. I found a doctor familiar with POTS and he told me to eat a lot of salt. After 4 years in bed, it worked. So, for a long time, with the exception of dizziness/vertigo and feeling faint in correlation with menstruation, I was functional Last year, I suddenly developed SEVERE vertigo, to the point that I couldn’t turn my head or get out of bed for 4 months. I had to go off the beta blocker because it was making the dizziness worse. Now, I have to be checked for MS and a Scheannoma.. I was checked years ago but since the vertigo and dizziness have become so chronic, I have to be re-checked. Since last year, the dizziness has not subsided. It had gotten better but is now getting worse again. I’m also noticing my heart rate going up again, at times when it hasn’t in a long time. I cannot live the rest of my life like thos. I’m pretty convinced that now I habe MS on top of dysautonomia but because I feel sick from the dizziness, I can’t get through an MRI. I’m at my wits end. I’ve felt sick for too long. It’s enough! Universe, you’ve won! I give up! Is dysautonomia a lifetime illness that waxes and wanes?
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