I’m new to this forum. I started having all kinds of unexplainable aymptoms when I was 14. I had frequent episodes of feeling faint, a lot of nexk pain, dizziness and other symptoms that son’t really for the peofile foe this illness.
For a while, I was a lot better for no apparent reason. At 21, I developed “idiopathic” tachycardia, before I even knew what dysautonomia was. I was on a beta blocker and was okay for a few years. At 27, I began feeling sick, especially in the morning, after earting. For some reason, I could no longer tolerate carbohydrates in the morning. However, whenever I ate, I’d get tachycardia. I found a doctor familiar with POTS and he told me to eat a lot of salt. After 4 years in bed, it worked.
So, for a long time, with the exception of dizziness/vertigo and feeling faint in correlation with menstruation, I was functional
Last year, I suddenly developed SEVERE vertigo, to the point that I couldn’t turn my head or get out of bed for 4 months. I had to go off the beta blocker because it was making the dizziness worse. Now, I have to be checked for MS and a Scheannoma.. I was checked years ago but since the vertigo and dizziness have become so chronic, I have to be re-checked.
Since last year, the dizziness has not subsided. It had gotten better but is now getting worse again. I’m also noticing my heart rate going up again, at times when it hasn’t in a long time. I cannot live the rest of my life like thos. I’m pretty convinced that now I habe MS on top of dysautonomia but because I feel sick from the dizziness, I can’t get through an MRI. I’m at my wits end. I’ve felt sick for too long. It’s enough! Universe, you’ve won! I give up!
Is dysautonomia a lifetime illness that waxes and wanes?