amj1156

8 hours ago, HappyBee said:

@Pistol Do you ever check your blood sugar using a blood glucose monitor? I am wondering if I should get one just to see if what I am experiencing is actually hypoglycemia or something else. I will talk to my doctor about the glucose tolerance test.

I thought one hour was a little fast for an IV. The new order my doctor wrote is for 1L Lactated Ringer's without Dextrose administered over 2-3 hours once a week. I will ask for them to do 3 hours to be safe.

Enjoy your Spring for me! It is already in the upper 80s here in sunny Florida.

I got Normal Saline 1-3x a week for a year and a half. My 1L bag ran over two hours, but anything faster would make me sick...bad headache, worsening fatigue, uneasiness. Also, when I first started IV therapy the day I recieved fluids I always felt bad. I would need to lay in bed mostly, but the day following I would feel the benefits and increased energy. This went on for a few months and then I no longer felt sick from them. During these months though I was steadily improving...increasing BP, less syncope, so the IV's were working. I hope you feel better next time!

12 hours ago, Mistri_The_Squirrel said:

I just read that the government is looking to "crack down" on gabapentin like they have on opiods.  I hope this is not the case, because what are people supposed to do when they have no other option?

My POTS specialist is a nurse practitioner who works under a doctor who is world-renowned.  I realize I'm not the most serious case they see, so maybe I don't matter as much, but I just want to know if there will be any options for the buzzing my my legs and burning in my feet if I switch from an SNRI to an SSRI, and she will not answer the question.   I got a response that all SSRIs and SNRIs work for POTS, but that isn't true.  Pristiq is making my POTS worse.  I don't know what to do next.

The last time I saw my neurologist, I was told that my problem is anxiety.  But my tilt table test was positive, so...no.

Who am I supposed to go to for help?  These doctors are no help at all.

I was also taking Pristiq when I was first diagnosed with POTS. It did nothing for my neuropathy pain. I tried Lyrica and Gabapentin. Lyrica worked for a month and then the pain came back. I also gained 25lbs in one month with the Lyrica. Gabapentin also caused me to rapidly gain weight. I then switched to Cymbalta which worked wonders for the neuropathy and my muscle and back pains. The Cymbalta didn't seem to help or hurt my POTS symptoms, and I was able to lose all the weight gained on Lyrica and Gabapentin.