Anamaria

Yes on and off that’s been an issue of mine. I’m currently wearing a holter right now but I’m sure it won’t show anything out of the ordinary. The tachy oldly enough I can deal with, but the Brady scares me for some reason.

I also have Hashimotos and I’ve often wondered if that’s what is causing my POTS and other Dysautonomia symptoms. My General Doctor said that it isn’t effecting my levels as of yet but she is considering putting me on a low dose of thyroid meds to see if that will help. I have an appt in a few days to discuss that option. I hope your daughter starts feeling better soon. I can really relate though because my body is all out of whack and my levels are still fine.

Lol I cleaned my entire my house today and my left leg is numb I also feel like my pelvis is out of place, so with that my pinky toe and the one next to it goes numb and sometimes they feel cold. (They are currently leaning towards Ehlers Danlos type III as another diagnosis for me) Last time this happened, I talked to my Nuero and the PT that he sent me too, she figured out that my pelvis was rotated! I’d call your Neuro, maybe they can help? I hope you figure it out and feel better soon as I know from following other posts you’ve been feeling pretty good lately.

I agree I saw Dr. Muldowney at Vandy and he was AMAZING.

I meant to say that I have low B12 at the moment and that can cause twitching so in a few months when my B12 is back up I’ll be curious to see if the twitching stops

Yes I do. I have for a few months now. I also get a lot of facial twitching. I’m starting to take magnesium to see if that helps.

I have very bad acid reflux and I started thinking today that maybe that’s what makes you feel out of breath? I just started a new med for reflux today so time will tell if it helps me. I’ll keep you all updated.

All of these replies make me feel a little more at peace. I’ve been diagnosed with POTS for a few months now but this is a new symptom. I also have mild asthma so it’s tricky to decipher which one is the cause.

Yes I’ve been monitoring mine and so far it’s been normal. Hopefully it’ll go away soon. I’m encouraged since you said yours went away....did it last for a few days?

I also get the feeling of not being able to take a deep breath as well. Almost like you’re just taking shallow breaths....

Is this a thing with Dysautonomia? I’ve felt lately like I skip a breath (not even sure if that makes sense). Anyone else get this weird sensation or something similar? This is a new symptom for me not too worried as I went to my Asthma doctor and checked out fine but it kind of jars me a little when it happens.

I also have tremors after my episodes they last a while but never has it been 6 hours.

This is awesome! Looks delish😊

Two days in a row that I’ve just felt off it’s the oddest feeling and I do not like it. Thank you everyone for replying I’ll try a few and I’ll report back and see if any help.

Im sorry your not doing well tonight! It’s like you think you’re doing okay and then BAM!!!! I drink at least four 33 oz bottles of water daily I’m not sure if that is enough? And I also add a can of V8 and I salt my meals. The dry mouth and “off” feeling tonight is almost unbearable. I know the doctors say this isn’t dangerous but it FEELS like it when you’re experiencing the symptoms.

I forgot to add that I feel like I’m burning up despite the fan being on in my room and AC is roaring!

Tonight my symptoms are terrible. I’m currently laying in bed with extreme dry mouth and that overall sense of impending doom that I’m sure you all know so well. My heart rate has been all over the place from the 50’s and up. Anyone have tips to just stay centered when they feel at their worst any tricks to keep your mind strong so you don’t freak out? I’m battling tonight and I absolutely HATE this feeling.

This is awesome Don! I’m going to ask on Wed. If I would be a good candidate for this.

I get them all in the same places! Hopefully the magnesium will help. I’m also going to start swimming at least twice a week so maybe that will help some too. It’s good to know I’m not the only one.

Amongst other annoying symptoms that I have I seem to have a lot of muscle twitching lately. I’ve started taking Magnesium and B12 complex to see if that helps but I was wondering does anyone else suffer muscle twitching? If so, anything that you’ve tried to get it to stop?

I’m going to ask my EP zig this is an option for me as well. I met with the PA on Monday and she said if it happened again that they wanted to place another holter monitor....(I don’t want another one) it gives me terrible skin reaction and it always only shows the Brady and Tachy. The loop recorder is a great idea.

Congrats on your little guy! I’m no medical expert but I will say I have bouts of Bradycardia. It concerns me as well just because I’m so used to having a high heart rate. I even get episodes of my heart dropping and then speeding up all within a minute or so (those are not fun at all!) I guess if everything came back good in your workup it has to be something autonomic related. Hopefully you’ll get to feeling better soon. I know when I have my bouts of Brady I get super worked up too just because it isn’t my “norm”.

I had to wear my holter for over a month for them to really catch anything significant. It showed exactly what you described where it goes super low then really high. I just met with PA att EPs office today and she said if it continues to happen she wants to put another holter on me again.

Is your dry mouth worse after eating? Mine is always worse after eating and it irritates me so bad because no matter what I drink it’s super dry for a while after eating.

My heart literally goes all over the place my EP can’t explain it. There has been talks of pacemaker as a last resort but neither I nor my EP want that. I haven’t drank alcohol in over a year