Katherine

Gail, I have orthostatic intolerance. it's beyond miserable. I don't have POTS either, but have found a lot of help support wise from the POTS community. I know people with POTS who are able to do a lot more than I can. I think in all conditions of dysautonomia, there are symptoms that range in severity. What have you done for relief? My neurologist who diagnosed me with orthostatic intolerance (after the tilt table and other autonomic testing) gave me a list of things to follow. It took months to notice a marked improvement, but it really did help. A year ago I was practically bed ridden. Now, I am mostly housebound, but can be up for 3/4 of the day. Huge difference. I'm happy to share if needed.

Steven, your condition sounds unbearable. I hope you've gotten a diagnosis. I have a friend who has been diagnosed with POTS and MSA. He also gets the "bubbles under his skin" from his fragile capilaries that his doctors can't explain. Although his bubbles are about the size of a large beetle. He gets it when he's stressed in any way. Have you found any answers in regards to this? You're not the only one who's suffering with all these symptoms!

Peter, any diagnosis yet? I had the tilt table and other autonomic testing done and was diagnosed with orthostatic intolerance. I have the same symptoms as you do. Ever find out why your feet hurt so badly? I can barely walk in the morning and when I've been sitting during the day. Almost unbearable.