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Edsia

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  1. Hi! Did your daughter's pseudotumor cerebri improve after the surgery? do the doctors think the pseudotumor cerebri was caused by the cervical instability? I suffer with pseudotumor cerebri as well and I'm wondering if it's connected to the Craniocervical instability. I also have ehlers-danlos syndrome,severe M.E and POTS and I'm bedridden. Unfortunately I live in a country where there's no knowledge or treatment options available for these conditions. Wishing your daughter a speedy recovery!
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