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About Abjadeya

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  1. Thank y’all for your support and for sharing what works for you. To be honest these forums have given me more help, support and understanding than any doctor I have been to ❤️. I am going back on Nexium tomorrow. I may try sleeping a little elevated like you said @Peter Charlton ... the only issue with that is that my pots symptoms are better when my legs are elevated while I am flat on my back, so I am going to have to choose lol. I take Zofran when my nausea is intolerable. It does nothing for heartburn and it gives me terrible constipation so I only take it when I feel like death. I am sorr
  2. I think I am going to have to do that @Mistri_The_Squirrel. Though my nausea is significantly better, my acid reflux is terrible. I just went off nexium and technically can't take any more. I, unfortunately, don't have a POTS specialist yet. I have been on several waiting lists to be seen. My appointment is in September :(.
  3. I am so glad you posted this - it gives me hope <3!
  4. Thanks y'all! I have had extensive GI testing, because that's how my POTS started presenting itself at the beginning. I have done ever GI test out there - my latest were only last year - I have been cleared from Barett's thank god. My GI doctor was so fed up of me she put me on B12 and vitamin D supplements and sent me on my way. I have GERD; that's the only official GI diagnosis I got. Thank you for that @Mistri_The_Squirrel , i completely agree with you, which is why i kept persistently going back to the GI doctor. I am terribly sorry about your dad. @Pistol I have been on nexium before, I
  5. Hello everyone, I get really bad upper GI symptoms (sometimes lower too) like nausea, heartburn, indigestion, loss of appetite, dry heaving and more. The nausea is sometimes so bad that combined with other POTS symptoms, it makes it hard to do basic daily activities. I have a Zofran prescription - so I take that when it's intolerable. But I can't take it often because it gives me severe constipation, which I try to avoid. Does anyone have similar symptoms - if yes - what helps? Are there any home remedies I should know about? or any specific foods I should try eating (or avoiding?) I hav
  6. Definitely good compression tights. I was really skeptical about them at first but they worked for me. Physical therapy would someone who actually understands POTS can help build tolerance is what I heard. I am trying it for myself just now. I only had one session and it didnt trigger me so I am counting it as a success for now.
  7. Thank you so much for all your responses!! @Always hoping honestly just finding this website and your responses helped. It was really difficult feeling like I was going through it alone, even though I have such a supportive environment. Still, I found myself having trouble articulating how I felt when I got extremely symptomatic, or when I felt great all day and suddenly felt sick and had to leave an outing or bail on my friends. My doctor is a good listener, and I think if I keep doing my research I can get her to monitor certain things or provide more support. She's trying to get me in to IV
  8. Hi All, I just joined dinet. I have been struggling with POTS & hypothyroidism for 3 years now. I just got diagnosed a month ago. I was bedridden and completely not functional the first 5 months. I thought knowing what was wrong would bring me some comfort. Taking thyroid medication stabilized me a bit, but my POTS symptoms are still pretty impressive. I have been hydrating as much as possible and using hydration pills, wearing compression stockings and all that, but I still have to work from home and I am unable to live a normal life for my age (28 yrs). My periods are devastating in
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