Jrd030

I had came across it when trying to figure out what the heck I had before I was diagnosed yesterday, but never in detail! Thank you!! I will certainly look into this and mention it to my neurologist here.

Exactly what @CIb75 said. Recumbent positions and you have to start off extremely light very slowly work your way up. It can take months. I was just diagnosed yesterday, but this is a pretty consistent thing I hear from people who have improved their symptoms. I went to the Mayo Clinic to get diagnosed and that’s what their neurologist told me yesterday.

I’m assuming all of you are already trying to lightly exercise, stretch, drink a lot of water and a lot of G2 Gatorade (or another electrolyte drink), increasing salt intake, etc.?...

So I just joined “the family”. First off, I want to say hi to everyone and I plan on helping people with whatever their diagnosis is, and working together with everyone to make getting through POTS and other Dysautonomia conditions easier. Any recommendations for me will be more than welcomed. Side note: if you can’t get a diagnosis from the local doctors wherever you are, then I HIGHLY suggest going to the Mayo Clinic if that is an option for you. I’m not sure where to start, so if I seem out of sorts, I apologize. I’m currently at the Mayo Clinic in Arizona after trying to figure out what was wrong with me for 3 months. I do want to mention that I am still undergoing further autonomic tests here, so this may not be my only diagnosis. Before I came to the Mayo Clinic, I was hospitalized for a week and half, and all they could find wrong was that they could not figure out why my lipase was so high. I saw a rheumatologist, neurologist, endochrinologist, ENT, GI, immunologist, cardiologist, pulmonologist, and maybe another doctor I’m forgetting. Nothing. The only thing they came across was that upon a facial x ray, i had a severe sinus infection which has since been addressed, but it obviously was not the underlying condition. I had and still have some very weird symptoms. Anybody have a spell of major tremors and have extreme difficulty breathing? Anybody at one point have eating a few bites of food cause their symptoms to come on and have a very difficult time breathing? I will say that those were more at the beginning when all of this started. Even before that, my first “spell” was when I was lifting weights (I used to religiously do this 4 times a week), and after a set of calf exercises, I had this feeling come on and radiate through my body. I mostly felt it in my arms and my fingertips, but also across my abdomen. It was a bad tingling feeling and my heart beat slowed along with my breathing. I felt like i was going to pass out, but it started to go away 15-20 minutes later. I did take a pro hormone supplement 2 months prior and I would always take a pre workout supplement. Although, the doctors here don’t seem to think that’s what caused this. I’ve had changing symptoms and smaller weird symptoms. However, I will say this month, my symptoms have been better overall. Although, I am on 0.5mg of lorazepam 3 times a day, and it seems to really ease my symptoms. Questions, comments, and concerns are all welcomed! Thanks in advance!