Lianac89

I was worried about that too. They said log term will cause adrenal insufficiency and my body wont produce cortisol on its own. I’ve been on it for 4-5 weeks now and was told I’d be switched to midodrine. I think it’s the medicine here in Las Vegas. It’s so behind. In the hospital when I get a bolus of saline it helps the most. But wears off within hours. I wake up with daily headaches now. Yesterday I got tunnel vision at the market and sat down before I felt like I was gonna pass out.

Ok I will start measuring my salt, I’m sure to not enough. I was told I will need to get a tilt table test when I see the specialist. I’ve read on this and am kinda nervous. Did any of you require medication to be given? Or pass out? I haven’t passed out and I’m worried about it. I get tunnel vision and really short of breath and weak when my heart rate goes up but then I sit down. My cardiologist here said he doesn’t want to keep on me fludrocortisone for a long time and wants to switch to midodrine at some time.

I’ve always drank plenty of water. Now I drink about 4-7 liters of water and I add salt to everything. Sometimes I drink a big jug of Gatorade. I don’t know how to measure my salt intake. My blood pressure before was always low 100s/60s and last one was 128/80. When I first noticed it I was in the shower, I could felt my heart beating hard and fast and I felt lightheaded. I have never passed out but I have also never pushed it. Now it’s seems like my symptoms are weakness in the neck area, shortness of breath. I get very tired.

Hi! I’m 28 years old and was diagnosed with POTS recently but no by a tilt table test. My heart rate sitting is 60s and then goes up to 120s-150s when standing. They started me on fludrocortisone and said drink water and eat lots of salt. I drink tons of water. So when I shower my heart rate goes 120s even on the medicine. I was also experiencing neck and chest muscle weakness. At first the drs were thinking maybe I have an underlying neuro issue causin this, but all my neuro stuff is coming back negative. I’m noticing now that my symptoms like neck and chest weakness are worse when my heart rate elevates. I am just looking for advice. At this time I’m waiting to go see an EP at USC because that’s where my insurance will send me. I live in Las Vegas and was told there’s no specialist here. I’ve been out of work over a month and it’s been tough. I really want to figure things out and get back to work. Anyone have an information? Experience? Advice? Anything while I wait for a specialist would be helpful.