I've had POTS since I was a kid, and had mostly gotten over it by age 21. So it wasn't in the forefront of my mind when I began experiencing a pulsing, stabbing pain in points all over my body a little over a year ago. After being diagnosed with Lyme and then fibromyalgia by four different doctors, I went back to my childhood neurologist, Dr. Rowe at Hopkins. He disagreed with the fibro diagnosis, and had me get an MRI.
That MRI revealed a retroflexed odontoid that pushes my top vertebra forward, kinking my spinal cord and putting significant pressure on my brainstem (which is also hangin