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Sea-poet

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    A life well lived, despite my conditions ❤️

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  1. Hi, I am working with an Occupational therapist. She asked me to write a daily journal of my day. This was two weeks ago. She will be coming tomorrow. I am trying to build some sense of rhythm to my day for my well being and to help my dysautonomia (I am home bound due to its severity) My request is for others to write out their day. Sometimes I sleep for 13 hours. Sometimes it takes me a very long time just to eat a bowl of oatmeal. Seeing things written down has been helpful, but also a bit sad. I pretty much do the same thing every day and it’s looking like the diary of an 85 year old woman. There is room for change, and part of this is not being on the second floor with no elevator, but for now, this is where I am at. Please help me by letting me know what you did today (even if it was stay in bed all day) because it will really help a lot. I have terrible blood pressure issues, I can’t be upright for very long, and so far, I’ve been allergic to nearly every drug for help, but Midodrine. But, that’s a topic for another day. Thanks in advance.
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