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Gamoore14

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  1. Can you tell me more about your pacemaker and how you went about getting one. How has it improved your health since getting it?
  2. I was recently diagnosed but have been symptomatic for years. My doctor put me on iv fluids and for about 2 months every thing was great. My blood pressure would run a little high but I was feeling a whole lot better. I wasn’t passing out near as much as I was before, I had less brain fog, more energy, less dizziness, and my heart rate slowed down from 120 bpm+ while resting to 70bpm while resting. I get 1.5 L of saline over 3 hours through my port. I have tried several pots medications before and my body couldn’t tolerate them. I also tried getting enough salt and water through oral intake but I was constantly vomiting. For the past 2 weeks I have been feeling horrible. Passing out 7+ times a day, fatigued, brain fog, heart racing 200BPM+, and really dizzy. I went to my cardiologist ( who isn’t my pots doctor) for my yearly check up and he said that he didn’t see any concern with my heart rate or the palpitations. He did take blood and a urine sample to test and thankfully I didn’t have an infection but I was dehydrated. Which I don’t understand because I am Drinking plenty of water, getting salt, and doing my daily fluids. My cardiologist didn’t do an echocardiogram or anything. He just listened to my heart. My pots doctor called and there is no way I should be passing out. He wants me to check my blood pressure through out the weekend and report to him on Monday. Tonight I took it before I started my infusion and it was really high and my heart was high as well. I checked it again about 20 minutes into it and I was normal. Then I checked it when I had about 400ml left and it was climbing back up both my heart rate and blood pressure. As I am typing this I have about 200 ml left and I will check my blood pressure and heart rate when I get done. Has as anyone else experienced this? I don’t know what to do or what could be causing this to happen. I will take any advice and wisdom I can get!
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