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About jojochristine

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  • Location
    Conshohocken, PA
  • Interests
    Nature walks, mind-body practices, holistic health, languages, other cultures
  1. I have an autoimmune disease as well as dysautonomia, so I don't get flu shots anymore. My holistic doctor said that taking NAC has proven more prevantative than taking flu shots and much safer, because flu shots will activate the immune system. So I take several caps of NAC each day. It also helps with estrogen detox and lupus pain, so I'm killing 3 birds with one stone.
  2. I'm sorry to hear how hard it has been. I know what it's like to be stuck inside, in bed, tired, and not able to work. Though things are far from perfect, I'd say I'm functioning at about 70% most of the time, which is amazing compared to being bed bound. I do not technically have POTS, but I have a bunch of dysautonomia symptoms, including anxiety/panic and fatigue. I now work from home for the same company I was working for before my illness. I try to work hard on the days I feel good to make up for the days I don't. Working from home is tough because you're alone, but it does give me a cert
  3. The other day I listened to a Phoenix Helix podcast, in which Eileen Laird interviews an integrative doctor about doctor/patient relationships. It turns out that the doctor being interviewed has struggled with dysautonomia for over 10 years! When I heard this, I reached out to her to ask for her advice. She took the time to reply, which was so kind of her. I wanted to ask if anyone has had experience with the advice she gave me (see below). Would love to hear about it! What I have found most helpful for my dysautonomia--and what I recommend to my patients: Mind-body practices like
  4. One of my main concerns is dealing with high anxiety, which I have because of dysautonomia. I'm already on an antidepressant to help keep me from panic attacks, but being in plane will only increase that anxiety.
  5. I've wondered about flying as well. Because of dysautonomia, I have breathing and anxiety issues, and am having trouble thinking of flying at this point. Any tips?
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