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dawn

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Everything posted by dawn

  1. Melissa, I have read your posts several times. I believe we are "triune" (three-part beings). We have an eternal spirit who has a soul and dwells in the physical body. When we accept Christ, our spirit man is with God. Things will continue to come at our flesh but our spirit man is strong and protected. I know we all battle with fear but fear is not from God! Physically you are in a very difficult situation. You handle it with such strength and grace. God has his hand on you, Melissa. I know your faith in him is strong. He is your father who hurts when you hurt. I pray for angels to be placed in the four corners of your room. I pray that they begin to heal your body as you rest and comfort you always. Amen and God Bless, Dawn
  2. I have had several crowns done. The dentist uses Carbacaine, I cannot tolerate lidocaine at all. I have NO problems with it. It has only a tiny amount of epi so you have more bleeding, but not enough to affect your heartrate or BP. Dawn
  3. I would be lost without my little voice recorders. They are small, I think I bought my at Walgreen's. I also saw them in the LTD catalog. I leave one in kitchen by my pills. When I take it I record it. Also the ones in bed, I turn the bottle upside down after I take it. Then when I wake up I know I have taken it already in the morning. Dawn
  4. Why is your digestive system slow? Why abnormal sweat patterns? Why can you function one day and not the next? What meds help the most? Does warm weather or cold weather make you feel better? How many people have this condition? Is anyone born with it? Does it tend to run in families? Does it affect more women than men and why? What is the most common cause of death with people with this disorder? What is the best exercise program? What kind of doctor do most people see? Does it affect your sleep? Do most people have children who have this disorder and does pregnancy make it worse? Guess that's it. My brain stopped. Dawn
  5. Wish you luck and hope they find the problem right away and it is a "simple fix." Dawn I never had the courage to have one done. Luckily beta blockers are my best friend.
  6. Brenda, I have seen Dr. Low twice. I have no idea if he sees children, so can't help you there. He always sends in a resident first. Then he sees you and orders the tests. He then explains all of the results in detail when you are finished. He is very knowledgable. He spends alot of time explaining. I think you would like him. He works alot in research. Dawn
  7. Welcome Mark! I have been dealing with this "syndrome" for my whole life I think. I got really sick in my mid 30's after a sinus infection. I am now 52. I have never been able to accept being sick. I have seen psychiatrists, psychologists, social workers and I cannot accept it. My physcian also was sure I was his one pheo he would diagnose. Then it was testing for addison's (he was sure). NOT. I have been to Mayo twice without any revelations. I wish I had some words of wisdom. My physician of 17 years presented my case to the new residents and if they could come up with something helpful, he bought them a 12 pack. I'm tired. I'm sick of having syncope, tachycardia, irregular heart rhythms, headaches, nausea, vertigo, loss of appetite, loss of libido and on and on and on. If nothing else this a good place to vent. Dawn
  8. Klonopin is actually a benzodiazapine, it is longer acting than xanax or ativan. My doctor ordered it for me several years ago at bedtime. He said that even if it doesn't make me sleep, it will give my autonomic system a rest. It has helped me sleep much better. It is often prescribed for seizures. But, sometimes is given for anxietiy disorder. Feel awful in the mornings but that's due to BP problems. Dawn
  9. I take Tylenol and Xanax together twice daily. I have for years. Dawn
  10. Have you tried the nasal prongs? I had better luck with them than the mask. Unfortunately, I cannot use mine as my sinuses really flare up. If you don't have sensitive sinuses they work great. They fit like oxygen prongs but, have a soft end on them to fit snuggley in your nostrils. Dawn
  11. Hi, I totally understand. I was a real social person, would drive from Seattle to Wisconsin alone. Had no fear of anything or anyone. I went through a period like you are going through now. I know that I have physical limitations now, but I do push myself to stay in contact with people. You need to set small goals for yourself. Take advantage of the moments that you feel OK (as OK as we feel) and go do something with someone. It doesn't always work out so well but isolation is not the answer. Picture yourself how you want to be and tell yourself you can do it. Affirmations. Start small, don't overwhelm yourself. Don't affirm to yourself that you are a "shut-in, worry-wart, shrinking violet, wall-flower." Don't believe it. I don't know what your physical limitations are. I start by saying, I can walk to the post office and back (1 block away). Then when I get home, I say to myself, I walked alone and I am still alive. I can do it. I talked to people at the post office. I will compliment someone on what they are wearing or buy a stamp just to have a conversation. If I go somewhere with someone and feel very anxious, I just acknowledge that I am anxious but say to my anxiety, "anxiety, you will not ruin my day." I take the power away and say I have felt like this before many times, SO WHAT!!!!!! If my heart races or I become dizzy, I tell myself, this is not new you have been here before many times. I know it is hard. Feel free to email me. Dawn
  12. Couldn't survive without Inderal. I take 10 mg 4 times daily. The side effects are not pleasant but the constant tachycardia is my other option. Dawn
  13. Welcome Lisa, I think this time of year is frustrating for all of us. There is more to do and no energy to do it. It sounds like you are handling things well. It must help to have a sister who understands. I feel better in the summer when I can at least sit outside. Sometimes when we get in these pots holes, we feel like we will never get out. Hang in there. Dawn
  14. Happy Happy Birthday to you. Thank you for all you do for all of us here at DINET Dawn Lets eat cake!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
  15. First and foremost don't anticipate the worst. I took the Amtrak 2 years ago from Wisconsin to Washington, I got a sleeper there and the handicap room on the way back. The porter was so nice, if I didn't feel good he brought my meals. Also I had so many pillows!!!!!!!!!!!!!!!!!!!!!!!!!!!!! On the trip there I was across from the porter's room so we talked alot. Then, a man had a stroke 9 cars down (I had told him I was a nurse) he asked me to go. Running through 9 cars landing on people's laps with my balance was a hoot. Remember people are people and most of us have problems. I went to the diner car and chatted with alot of people (not to downplay me anxiety which was hitting me hard) but we can do it! In September I had to make a speedy trip to Chicago when my brother had a liver transplant. The people on my car were so nice, they were putting up my footrest, offering me snacks. I told them that I was anxious and everyone was so understanding. You will be fine. I know you will. I always got out and got some fresh air whenever they stopped too. Don't be afraid to tell people you are anxious, it takes such a load off. Dawn
  16. I am unable to tolerate flying. I take Amtrak and really enjoy it. Dawn
  17. I am thankful that my brother had a successful liver transplant in September. I am thankful I was able to make the trip to Chicago and stay with him post op in the hotel for 10 days and help care for him. I am thankful he is showing no signs of rejection and is anxious to start driving his school bus again. I am thankful my husband got a job with the Mayo system in a satelite hospital. I am thankful my 17 year old son likes his new school. I am really, really thankful I was awarded Social Security Disability after a 3 year wait and I didn't have to go to a hearing. I am thankful God loves me. Dawn
  18. Jennifer, I have been on 5 different SSRI's over the years. Celexa works well for me. I only take 5mg daily (!/4) tablet. It has helped so much with those nasty adrenaline surges. Had some nausea for a couple weeks when I started but nothing since. I also have bouts of SVT and PVC's. I have correlated that with taking prilosec and protonix. Since being off of those I have a much more regular heart rhythm. I hate taking any SSRI's because I gain so much wait. But not having that panic feeling is worth it. You wouldn't think such a low dose would do anything but it has. I take it at bedtime. Dawn
  19. Stacey, I feel your sorrow. This illness is hard to accept. Now at age 51, I can accept it most days without too much bitterness. The years go by and it is our instinct to believe maybe next year will be better and then it is not. I have been ill over 16 years. My husband is a very active man, runs, bike rides etc. Sometimes as I lay in bed I resent him. What has helped me: My 2 dogs. It is hard to feed them and take them out but I make myself do it. My husband and I both had a son when we married. They are now 29 and 27. When I was ill, we did do foster care for older children. They understood my illness and were just grateful to have me to talk to and help them with homework. Bedtime stories were also a hit. We did adopt one of the boys when he was in 4th grade. He is now 17. There are many children who are older that want a home. It is something to consider. They don't require alot of care, just reminders and someone who loves them. They also appreciate the fact that mom is always home. Try to remember you can still have goals. Yes, we have limitations, but we also have alot to offer. My son Ben who is 27 always says "mom, when we are weak, HE IS STRONG." I cling to that. Jesse my 17 year old, has learned compassion, a boy they labeled with attachment disorder, will say "mom, I wish it were me that had POTS." He worries about me, checks on me when I am napping. A boy they said was "unadoptable." We are still God's children. He has a purpose for each and everyone of us. Stay strong, Dawn
  20. I have gained weight on every SSRI I have been on. When I go off, the weight drops right off as my eating habits are the same whether taking them or not. I like to be thinner, but then I deal with such adrenaline surges and anxiety. I have decided to take them and be overweight. I currently take Celexa, it is the best one I have been on. Effexor also worked well but I really gained the weight with that one. I have tried 5 of them over the past 14 years. Dawn
  21. LOVE ZOFRAN!!!!!!!!!!!! But, so expensive. I had nausea for many, many years. Lived on prilosec, zantac and maalox. When I started Celexa 10mg a couple years ago it disappeared. I rarely have nausea now and used to have it constantly. Weird. Dawn
  22. In the past 15 years I have been on Lexapro, Prozac, Effexor, tried Cymbalta. Last year I started on Celexa, only 1/4 of a tab and it works great! It has taken away my nausea and my adrenaline surges. Without the surges I have less tachycardia. No side effects. Dawn PS Can you purchase an inexpensive pill cutter at the pharmacy?
  23. Linda, Don't be embarrassed. I had agoraphobia for years. I started by just practicing driving out of my driveway. When my husband left for work I would freak out. I have recovered. I still get anxious when I leave home but have learned tools to help me. I would highly recommend that you get anything by Claire Weekes that you can find. She is deceased, but wrote the best books and even has a CD that I purchased last year. My psychologist recommended her books to me. I did a couple years of exposure therapy also. I am living proof that you can get over this. You can do it. Check on Amazon and Half.com on ebay for the books. They are hard to find. But I can't tell you how much they helped me. Dawn
  24. Now, Mary you may rest. I know you are in God's hands. I pray that Marissa wll be comforted. Dawn
  25. Finally, I got a pleasant surprise yesterday. I filed for social security disability in October of 2004. I had my 2 denials and was waiting for a hearing. Yesterday in my mailbox was an 8 page approval letter signed by the judge. I did have a lawyer, but what I think made all the difference was the letters that my doctor's wrote. They went into detail my symptoms and the physical reason that they occured ex:venous pooling. IT MADE MY DAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Don't give up hope if you are in the process. I think the word is getting out, my diagnosis for approval was Postural Orthostatic Tachycardia Syndrome. Dawn
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