I'm in a very bad place right now, sats dropping drop down to 78 when walking, bp 75/55 HR up to 150 and higher before the home health has a panic and makes me sit down.
Not going to the stupid hospital again - merry-go-round dilutes met and temporary fix, won't qualify for acute rehab because I didn't hit my head this time LOL I have 4 TBI's. They want me to go to a nursing home. Been there done that. Lie there an pool all day..THIS time URGENT bladder resorted to diapers 4 weeks the blood pressure swings are like pulling 5 gs every time I get to the port a potty 2 feet from the bed. Can you imagine the staffing ratio there? Wait.. piss myself, contribute to the urine smell then get up for the hour PT, then whap PASS out, call a code, ambulance and bruised sternum - back to the E.R. where they know NOTHING about POTS, (but they say they do) as they continue to take my sats and bp while I am laying down, and give my meds on their schedule which (I know they have too) but it's too long for my body to wait. Normal people saline is too diluted for me. Enter salt pills, salty dog diet me. Can't digest food well, so that's going downhill, - If I can get to my very supine recumbent trike, I can pedal that thing pretty hard and for a long time. This builds my strength. I use ice packs and drink ice burg water. Ted hose, Tight as ****, Lorna Jay pants and when I walk a tummy belt. It's now been a month and I have been able to get from laying to sitting in the couch chair. The scary part is that my bp and oxygen are NOT improving. This is going to be a long hall I guess. I am going to have to tighten my stomach and legs my a brick **** house.
