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harlo13

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  1. Just stumbled across this site and had to add my story. 11 years with mystery diagnosis problem, many doctors, very little progress. finally did a low histamine trial diet (among many many others) and had tremendous immediate improvement. researched ways histamine intolerance could manifest, found mastocytosis. screening for cutaneous masto positive, marrow and gi negative. H1, H2 blockers, cromolyn soduium all minimally helpful. gleevac 200mg stopped precipitous slide toward death but success was partial, still had frequent bouts of breathing difficulty unassisted by asthma interventions. severe sinus inflammation virtually constant. tried diazepam, only made me extremely sleepy. tried clonazepam, and it was like a switch for my breathing and sinus problems was turned off. i certainly dont feel perfect but i feel a **** of a lot better than i did two days ago. hoping it continues bc this would be a massive breakthrough for me. wish me luck
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