Crumblv

Dear Ancy! I did not see your original post! Oh my goodness you have really been through it all! I am a pharmacist working in home infusion and have taken care of patients similar to what you are experiencing from an illness perspective. You have so many comorbidities that it would be difficult to isolate the primary cause of your symptoms--this will be a challenge for your cardiologist and neurologist to sort out! You really need an accurate account of your input and output to ensure you are not behind on your fluids--this would include your enteral feedings and any other fluids you are taking in--are you able to take oral fluids at all? This information would be very helpful for your MD's as they assess the reason for the syncope. You have been so ill with lots of losses and antibiotics that it would be reasonable to think you are chronically dehydrated. A 24-48hr record of I/O's might be helpful.

I can definitely relate to your experience--I too am confused about why I feel pre syncopal and check my BP to find out it is high--this is particularly worse in the mornings--it takes me several hours to be able to function--I am trying to walk at least 1/2 mile a day and find that as I walk the symptoms improve --possibly to better circulation? Are you working on your exercise and diet routine to see if that helps at all?

Whatever you do-don't give up! You are on the right track with the tilt table study --it will tell them a lot about what is happening with your receptors, etc. You are a lot like many of us who have struggled with an explanation for our symptoms for years--the good thing is the symptoms are treatable ! hang in there--help is coming!

Yes I can attest that the recent storm (as I am in Alabama) knocked me down ! I had increase in dizziness and trouble staying upright the two days it days it blew through here--this is not the first time I have experienced this--I now am keen on watching the weather reports!