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Clichy

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  1. Thanks. Not sure what type of POTS I have. Can it vary? Sometimes my bp drops and sometimes it goes up when I stand. It is interesting that my pots has actually been pretty manageable of late. I seem to get chest pain at night after I lie down and try to fall asleep. It's like something overconstricts instead of relaxes... don't know if it is related to rapid fluid shifts from standing to lying? But prinzmetal is typically like this --angina at rest. But I would like to see someone who would consider that any spasming is in the context of autonomic dysfunction...My cardio is having me try a nitrate, which does the opposite of midodrine...so hard to balance constriction and dilation...
  2. I haven't been here in a while. I have Ehlers-Danlos syndrome and Pots treated with fludrocortisone and midodrine . I am currently struggling with chest pain at night as I fall to sleep. Thus far, my testing has been normal. I had a normal catheterization into thousand and eight. I am not having a lot of success getting the chest pain properly diagnosed and treated. There is some concern it might be vasospasms, but those are very hard to test and confirm. I have heard the chest pain is a common complaint in pots, but I am uncomfortable just dismissing it as Pots related. Can someone recommend a good doctor or center but might be able to diagnose and rule out vasospasms but that would also be knowledgeable about autonomic issues. I am in Illinois, but I am willing to travel to a certain extent to get this figured out. Thanks
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