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rachelsmom2005

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  1. Thank you all for welcoming me! Yes, I'm on the search for a different job that doesn't require travel. Not only can my body not take it as well as I had hoped, but neither can my daughter. Unfortunately, my "dream job" has turned out to be not so dreamy... I wish I could do it. I like what I do. Anyway, the search goes on but the jobs here are terrible, mostly entry level and pay wages that I used to make 10+ years ago. I've looked at a few options with going back to school or different jobs. For example, dental hygienists can get $25+ per hour. However, I don't think anyone would want me working on their teeth when I'm having hand tremors... The wheels in my head have been spinning, but coming up with nothing. On my so/so and bad days I wish I didn't have to work at all. And every time I can't make it into the office due to migraines, IBS (accidents), any cold or flu, or mentally non-functional I worry about losing my job. I'd rather leave on my own terms and with an income that will continue when I leave. And we all know that people don't understand why we seem to be sick all of the time. I know I've felt like I've been labeled lazy and a hypochondriac in the past by co-workers. It pieves me... To the mom with 6 kids, a job and POTS... I bow to you oh, Goddess of Wonder and Amazement! Because I wonder how you do it all! I am stunned and speachless! I have one daughter, one husband, one dog, one cat and a job and I know that I can't keep up with much of anything. My daughter knows that I have heart problems. She doesn't understand though why I can't just take a Tylenol and get better or why it's lasting so long. And I worry about her getting dysautonomia/POTS. I haven't let her know anything about THAT being a possibility. I have to run for now. Thanks everyone!
  2. New here and happy to say that I finally know what in the world is happening to my body. I've been trying to get my meds adjusted so that I have more good days than bad. I've had problems with every symptom of POTS there is. Besides being so tired some days to the point of not being functional, I think the night sweats where I wake up drenched, wrapped up in all of my blankets and freezing is one of the most irritating symptoms. However, I've been finding that sleeping with a heating pad has helped me - although I'm still testing this out. I'm 34, married, a mother of a 7 yr old daughter and work fulltime in a demanding position that requires me to travel (I've had this job a little over 7 months). I didn't know until last week that I have POTS. I've known for a little over a year that I have heart problems (mvp & 2 tachycardia arrythmias (sp)) and very low blood pressure issues (lots of near syncope episodes). I was trying to train to run 5K's when my body decided to start passing out on me left and right. I've had problems with near syncope for years when standing up. I just blew it off and chalked it up to my body doing strange and stupid things again. Stress test heart rate = 218 in under 6 minutes. My workouts were typically 30 to 50 minutes. The doctors said (with a horrified look on their faces) I'm lucky I hadn't inadvertantly killed myself or given myself a stroke. Sorry, my thoughts are a little scattered here... In the last several months I've really been worried about losing my job. I'm also concerned about how this is effecting my daughter. She makes a lot of comments about how I'm too tired to do anything with her or play with her. Last Saturday I spent some extra time with her only to end up spending another entire Sunday in bed (getting up and moving around during these bad days - I constantly feel like I'm going to pass out with every turn of my head). I've spent way too many evenings and weekends in bed with no energy. Sometimes I feel like a mere shadow of who I used to be. I'm a little nervous about my future. We've had to keep increasing meds and switching meds just about every month. They seem to do the trick for a couple of weeks, then the near syncope and extreme fatigue returns. (I'm on Midodrine and a different beta blocker (4th one?) now. I didn't like Florinef - made me gain weight (water retention I guess). I think this may be hereditary - my grandma was constantly fainting and had all sorts of problems with low blood pressure. As far as I know she was never dx with POTS. The whole thing is a little ironic. Back in the late 90's I thought I was on the path to MS. Now I have a name that I can assign to my troubles. It's weird how people don't think you're sick until your doctor says, "You have "THIS"." Then all of the sudden it's not just in your head any more. (Grrrr!) I have to say that I am concerned about my future. It looks like financial help (disability) is harder to get than the hope diamond. Over the last several years I've missed a ton of work. Over the last few years I've felt like I'm getting more and more tired and worn down. I don't feel depressed. I WANT to have the energy to get out and do the fun stuff I used to do. But I have a hard time just getting out of bed to get to work. I love being on a high-salt diet since I'm a salt-o-holic! Giving up cafeine is not working out so well for me though. When I feel tired it's the first thing I reach for! I really want my energy back. I don't like spending at least one weekend day, if not both, in bed and completely exhausted. Anyway, I feel like I'm in good company here with people who actually understand what it's like to feel this way. I'd love to hear from you!
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