Hello
I'm new here, just diagnosed a month ago with POTS after two weeks in acute cardiac care. I'm taking fludrocortisone once daily (100mcg), drinking 3L of water, and eating a lot of salt. I'm also using nuun tablets on bad days and trying hard to exercise using resistance bands lying down. Apart from the tachycardia, breathlessness, and fatigue, my main problem is my veins. I have bulging veins on the backs of my hands that really hurt, and I've had the same on the top of one foot that was sore enough to wake me at night. The foot one was a pulsing pain, as if it hurt each time blood pumped through, but the back of my hand is a constant, tight pain. It feels almost like I have an IV cannula inserted. I'm not sure if this is a side effect of the fludro or if it's the amount of fluid I'm drinking, or if it's a POTS symptom. It's very uncomfortable though and the only thing that seems to help is applying an ice pack, which isn't convenient when I'm out! Has anyone had experience with this? Thanks.