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sreese68

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  1. The doctor thinks she doesn't need abdominal compression, thankfully. She decided on knee high because her ankles measure a size bigger than her thighs, so she was concerned thigh highs may slide down when sized comfortably for her ankles. Also, we're in Texas, and it is HOT until the end of September. We'll see if she wants to try thigh highs once it cools off end of October.
  2. Thank you! I found a place in town that carries Juzo Soft, so I think we're going to go there, so she can try them on.
  3. After my daughter's TTT, we bought her Therafirm knee-high compressions socks 20-30mmHg at the doctor's office. I'd love to get her another pair or two, and I thought I'd see what other ones are out there. She has really sensitive skin, so the fabric has to be soft enough to not irritate her. (She couldn't tolerate the sheer Therafirm ones.) I don't know if we should also order her one in 30-40mmHg to try out. I just hate to order a million things and return them if I can avoid it. She's 19, so adult sizing. I'd be nice if we could find something cheaper than the $60 we paid, but as a sensitive skinned person, I'm well aware that you sometimes have to pay more to get softer fabrics. Thanks!
  4. Copied from above: UPDATE: We're looking into deferring for a semester or year. She's talking to her adviser tomorrow. The comments here helped give us a gentle nudge in that direction, and I appreciate it. I hope to get her on the board and posting her own questions at some point, but she's not feeling up to it right now.
  5. Thank you to everyone for the responses! I'm taking notes and will be calling the university Monday. I bought my daughter some compression socks that haven't arrived yet. She's very sensory sensitive, so I'm not sure she'll be able to tolerate them. Also, I wasn't sure if the help they'd give would be canceled out by making her hot wearing them when it's 90 degrees outside. For dorm life, she's able to shower. I think she may need a tiny pedals-only, under-desk exercise option vs her full-size recumbent bike, though. I wish she were up to calling the university herself, but she seems to be having a medication reaction that started yesterday. She's been on buspirone and had just increased citalopram a couple of weeks ago, so she's now feeling the med change. The doctor we talked to agreed that tapering off the buspirone was a good idea. I just hope she's one that won't get withdrawal problems. And that her dysautonomia symptoms won't get worse.
  6. UPDATE: We're looking into deferring for a semester or year. She's talking to her adviser tomorrow. The comments here helped give us a gentle nudge in that direction, and I appreciate it. ORIGINAL: My daughter is starting her freshman year at college next month. We discovered two weeks ago that her fatigue is due to dysautonomia. We did a poor man's tilt table test at home, and by 5 minutes standing her BP was 61/42 and her pulse was 139. She had to lie down because she was about to pass out. She'll be seeing a cardiologist August 22 for her first visit, but she moves into her dorm 3 days later before any testing can be done. We're going to contact the university to ask about disability accommodations, but I'm not sure what all to try to get. It's a huge campus, and I'm hoping they have a shuttle or something to get her to class until the heat goes down in October (Texas), and she's able to increase her endurance with PT and exercise. She's only signed up for 12 hours, but I know she may need to get a reduced course load. Anything else I'm not thinking of?
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