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About Flight272

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  1. Haha! I laughed at the "staying conscious is a luxury anyway" bit! Spot on. Good to know other people understand the irritation at being told not to worry about barely having a life because it'll get better at menopause. So in 25 years I'll be fine? And what exactly am I supposed to do in the meantime? What would my life be like by that point even if it were true that it would go away? What about those studies that showed quality of life is similar in POTS to people with congestive heart failure? No one tells people with congestive heart failure, don't worry, it'll get better in 25 years
  2. I have POTS and possible Ehlers-Danlos (still waiting for first appointment with geneticist). I was diagnosed with a pituitary tumour a few years ago, around the same time my POTS symptoms got much (and permanently) worse. It's just a 3mm prolactinoma though.
  3. I don't know, but at 28 years old my cardiologist pooh-poohed my POTS and said it would probably go away when I reached menopause. But I also think he's an idiot. And there's more than one cause of POTS - the kind typical of young people might not have the same origin as POTS that suddenly appears in an elderly person.
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