SScott

Thank you, SarahA33! I take my thyroid medicine in the mornings, wait 2 hours and take it and then take it again 4 hours after that. My side effects got a little better after taking it everyday and my goosebumps eventually started coming in patches on my arms. But they never completely went away. I found out I was pregnant about a month ago and stopped taking my midodrone. I will be going to my first prenatal appointment in a few days, so I will definitely ask about my options.

I had a TTT several months ago and was diagnosed with POTS. I wasn't really nervous for the test, just ready for some answers. I had an IV , the nurse told me just in case they needed to raise my heart rate in case of an emergency. I was in a lying down position for 10-15 min & then was in a standing position. This portion of the test was supposed to last 45 min unless something happened. It took me less than 10 min in this position until I passed out. The nurse said my heart rate dropped to the 40's. Before this I have never fainted, but had so many symptoms. Palpitations, heart flutters, chest pain, left arm numbness, extreme fatigue, light headedness, brain fog, bummed out mood, nervousness in my chest, and panic attacks. Basically when my blood pressure dropped my heart would be working harder causing all my "fight or flight" symptoms. I was prescribed midodrine to help ease these symptoms. Midodribe has been a life saver, but the side effects take some getting used to ( chills and constant goosebumps, and a tingling itchy scalp)

I'm kind of new to the POTS world. After 1 year and 1/2, I was finally diagnosed after doing a tilt table test. I was having all kinds of issues, more than just chest pain. I was first experiencing palpitations and flutters in my heart. In return my body would start having "fight or flight" symptoms. Palpitations would lead to chest pain that I felt sometimes in my sternum, got numbness in my left arm, aches in my heart, shortness of breath, brain fog, light headedness, extreme fatigue, and sometimes sharp chest pain. When those symptoms were present, I could feel the nerves in my chest bothering me. It felt like a bunch of buzzing bees along my sternum. Having these symptoms have also triggered panic attacks, which are always scary. I did all kinds of testing to rule out anything serious before my tilt table test. Chest x rays, holter monitors, blood work, and ECG. Everything turned up normal, except my ECG showed sinus rhythm, which they said isn't anything to worry about. I've also noticed eating bigger meals can trigger these symptoms (not sure of related or not). I do not think I have a severe case because I am able to stand on my feet for 8 hours everyday at work. It does, however, affect my everyday life I was prescribed Midodrine which helped a lot but the side effects weren't fun. ( chills and constant goosebumps and a tingling itchy scalp) I also have hypothyroidism and currently in the works of finding the dosage closest to where I need to be. Also not sure if the thyroid affects the POTS. I was just wondering what other symptom people with POTS experienced along with their chest pains.