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MarieR

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About MarieR

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  1. I definitely agree, start slow and see how you react. Give yourself lots of grace, it’s a balancing act. Just start small and work up.
  2. Oh my goodness, I might need to look into these. My earbuds always hurt my ears, so thanks for this tip!
  3. It's so hard to know what causes flares. Sometimes for me I don't have to do anything different, it's hard to predict. It gets discouraging, it's up and down. Sometimes it's just a couple of days and sometimes it's weeks. Just try and take good care of yourself in the mean time. It's really hard and frustrating, I hope you get feeling better soon!!
  4. Seriously??? An LSD overdose......because everyone knows that that is like?????? Oh my goodness that is a crazy insane experience. I'm so sorry. Some ppl are so so....AHHHHHHHHH!!! Like where is your brain? Where do these comments come from? It's so crazy.
  5. A good doctor can be hard to find. You don't realize this until you actually get sick and need a good doctor or team of doctors on your side. I had to switch doctors recently for primary care, and I'm so glad. My new doctor is amazing and understands things so much better. It's so nice to feel like she's on side.
  6. I feel like this....almost every night. I can't handle things. A tub helps me too. You are not alone, and I'm glad to know I am not either. Thank you so much for this post!
  7. I haven't found the "root cause" there is some speculation from a virus I had when I was younger, but they don't really know. I am still working out how to help managing my POTS. I did just find a new primary care doctor who seems to really understand this, so I am excited about that. I hope that you can find a doctor you can trust and can help!
  8. Hi there! It can be really hard even with supportive family. No one can really totally understand what you are going through, and how you feel. It's awesome to have this community to be able to talk, if things are good, if things are bad, any old time!
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