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Joe

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About Joe

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  1. Thanks for your reply, and sorry for the late response. Glad to hear I'm not the only one, but I'm sorry that it's not working as well as it could for you. I haven't heard of Northera, but I just read about it and apparently it has only recently been prescribed for POTS. It looks promising. Good luck.
  2. Background: I have what is considered mild POTS, however my symptoms affect me greatly.. 40bpm raised supine heart rate (56-96). Small drop in BP. No syncope. Fatigue and brain fog are my worst symptoms and they are taking a toll on my life. My non-medical treatment includes increased fluids, sodium, exercise, compression garments sometimes (not wearing them much now because its really hot, didn't notice much difference with them anyway). Out of all those, exercise has been the most helpful, though it is often difficult because my body aches and I am tired. I was prescribed Midodrine
  3. Thanks for the links. Does this type of prickly itching happen in patients without small fiber neuropathy? I had two biopsies for SFN. The first was positive, the second was negative (a month apart). Both were done in the same locations, maybe a cm or two apart. I put more confidence in the second because it was done by a really good doctor who specializes in SFN (coincidentally it was Dr. Lan Zhou who co-authored the second article you linked) while the first was done by a lab. I also have burning in the legs and feet which are common symptoms of SFN, but no numbness. So it
  4. I have noticed an increase in transient itching/prickly sensation on various body parts since being diagnosed a few months ago. Often in my legs/feet and arms/hands, but also back and abdomen. It lasts for a few seconds but comes back often, in the same place or in different places. Do many other POTS patients have this? What specifically causes this sensation in POTS patients?
  5. I do this too. I listen to a podcast called "Sleep With Me". It's a guy talking in a sleepy monotone voice, rambling on and on about nothing in particular. Its sole purpose is to put people to sleep, and it works better than anything else I've tried.
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